Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think Im Going To Feel Like This Forever


ReneCox

Recommended Posts

ReneCox Contributor

I am so depresseed right now. Ive been on this stupid diet for almost six months and I still have AWFUL GI issues 247. I feel like im just watching time pass me by and I see all my college friends have a good time and Im too sick to. I know I haven't been as careful about the diet for thse past 3 months or so but, for the first three months I was so careful and ate hardly anything and saw no change whatsoever. So I guess I probably don't have it right? Im 19 and I feel I should have healed quicker than this. Its just such a dissapointment...I told myself I wouldn't get my hopes up but I guess I couldn't help it. I have been praying about this for what seems like forever but now I just hardly have any faith left in God. I could really use some words of encouragement from those who belive in God right now... Thanks everyone

-Renee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Belinda Meeker Apprentice
I am so depresseed right now. Ive been on this stupid diet for almost six months and I still have AWFUL GI issues 247. I feel like im just watching time pass me by and I see all my college friends have a good time and Im too sick to. I know I haven't been as careful about the diet for thse past 3 months or so but, for the first three months I was so careful and ate hardly anything and saw no change whatsoever. So I guess I probably don't have it right? Im 19 and I feel I should have healed quicker than this. Its just such a dissapointment...I told myself I wouldn't get my hopes up but I guess I couldn't help it. I have been praying about this for what seems like forever but now I just hardly have any faith left in God. I could really use some words of encouragement from those who belive in God right now... Thanks everyone

-Renee

Hey Rene, nice to meet u .....I know where u r comin from my son says the same thing but, maybe u don't know that there r hiddin glutens in almost all products out there (my son says he want to tell the FDA to be more careful with labels) He too can't go out ot have a cheeeseburger with the guys or for pizza and God heres u hun just alot of times he gives us wht we need not wht we want so don't give up on him just yet.....Believe me when I say he's there cuz he is :)

I have made it through a seperation with his help(from hubby) severe nerve damage to both arms and now battleing "C" disease symp. plus worse allergice to LAYTEX which includes almost evrything in the world now due to all being plastic.....I know u feel like crap and don't think u can do this or that God cares but he does hun so hang in there we r here for ya :) Bea

wowzer Community Regular

Renee, I'm sorry that you haven't seen some positive results. On top of the diet you have to watch out for lotions, soaps, cosmetics, body washes. Could dairy maybe be a problem for you? I try to just think what I can have instead of what I can't have. I did find that once I went gluten free, I became more sensitive to it. You do always have to be careful. It will get easier for you, I'm sure. Wendy

  • 4 months later...
x1x-Stargirl-x1x Apprentice

hello. i don't particularly believe in god, but i believe there's the good in all people watching out for you. i feel horrible about the stupid diet too, i mean, people are always asking me about it and whenever my friends have a b-day i really don't wanna go cause there'll be cake.

hang on in there sis, even if you feel like you're a million miles from shore, someone will throw you the lifeline when you need it most. sounds cheesy, but the lifeline always comes, even if it's just a couple words from a stranger you'll never meet again in your life.

song~~~*so rescue me cause i'm hanging on this line, i won't give up on giving you a chance to blow my miind*

there'll always be the line as long as you believe there'll be one. who knows, maybe you'll throw the lifeline to yourself.

i'm always open to talk to!

.::STARGIRL::.

Guest thatchickali

I feel just like you (if you don't believe me read my other posts they are all either angry, or I'm scared about something) I'm 19 too, I have room mates who not only don't care but go out of their way to make me feel horrible about it and wave their pizza and brownies in my face. I know someday I should be able to make my own gluten free versions but my stomach is way too sensitive for pizza sauce or chocolate right now. But that doesn't mean it doesnt smell and look amazing.

I've only been gluten free 2 months, and don't feel better, and some days feel worse. The only thing I know is that a family friend took a whole year to get better, and I asked if he ended up finding another intolerance and he didn't, he just had a really irritated intestine.

My dilemma right now is whether to start other elimination diets while my diet is so unnutritious already. I've been having really huge signs of malnourishment, I constantly have a headache and today my fingers on my right hand went numb. I asked around and it's a pretty common symptom of calcium deficiency.

Many days I can't get out of bed and I end up harming myself just to put the pain somewhere besides my stomach.

I am in a battle with myself over my faith as well, I try to believe, but it's hard to believe that God would let this happen to me. I know it's not as serious as cancer or aids or other diseases but to me it's just as devastating to know that my whole life has to center around it. Knowing that my whole life is a sacrifice now.

I know that you feel like you will never get better, I feel like that too, but I have faith that I will find the key to getting better, whether it is another intolerance or just more time.

Message me anytime, it's nice to know there are people like me, but at the same time it sucks because I hate knowing that anyone feels like me. But really, message me anytime we can talk about symptoms and things that are and aren't working for us.

jmd3 Contributor
I have been praying about this for what seems like forever but now I just hardly have any faith left in God. I could really use some words of encouragement from those who belive in God right now... Thanks everyone

-Renee

I think it would be wise to keep a journal with everything you are consuming and how you feel at the begining of the day and the end of the day, it may really help you.

Don't worry that others are eating pizza and so forth, there is plenty of great food that we can eat being gluten free. Just try and eat healthy right now. I feel so much better when I just eat plain fruit, veggies, and meats. My system is still healing and perhaps I will be still healing for a long time, but with God's guidience and many prayers, I will get there.

A very wise woman once told me that if I ever feel like I am lost, or I am ever at wits end with why I am going through the things that I have and still am..... " just hold on tighter to your beliefs with God, grab his robe and hold on, pray more"....it can be a test for us and to keep faith at perhaps a very trying time in our lives.

Another wise women told me to sit and pray to the Lord, then just sit quietly in his presence, perhaps he is trying to tell you his plan, but you are not listening to what you he is trying to tell you.

These may sound like strange things, but it does help to hold onto to your faith, don't give up, I know it will get better. I know praying for others is also a help to me.

Arpita Apprentice

I'll never forget the quote, "Whatever can happen to a human being, can happen to me." This puts life in perspective for me. Life is uncertain, even with your faith. There are Christians whose child got hit and killed by a car, those with illnesses worse than ours. Jesus suffered a lot and so did most Christians in the bible and after the bible, most of them unto death. Some sense of suffering is part of being human. Sit with it some. To be still and know that God is God and God is the good in whatever you are experiencing. Be raw with the Lord, cry to him, share. Some peace can also come when we pray with thanksgiving for what we have, when we surrender to God over and over. Ask for the courage and strength. Also, keep in mind, this disease is new for you. Whenever a person gets a lifelong condition, you can go through the stages of grieving -- denial, anger, loss, sadness, acceptance, etc. This is human, you will feel it, it will pass, and he is there to be with you while you feel it. Keep doing your part! Don't give up! I know it can be really hard! I can't promise you that your prayer will be answered in the way that you seek, but I can say that the Lord always provides good in the bad. There is light in the darkness, and something human and something spiritual in every moment. In the meanwhile, He also says, keep asking, keep petitioning, and keep knocking on His door.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748

    Jamie B
    Newest Member
    Jamie B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.