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Biopsy Taken, What Does This Mean, Help

whattodo

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whattodo Enthusiast
whattodo
Posted

Hi everyone, well an hour ago i had a endoscopy and a biopsy taken of the Duodenum. When the tests were completed the nurse came and gave me my results of things they saw. She said my stomach was fine but when looking down the Duodenum she said it was flat, i had a look at the photo and the could see folds further down the photo but not in the beginning of the Duodenum. I asked her what that meant (as it was quite clearly a issue raised by the doctor) and she did not know. On coming back home I rang the hospital and asked to speak to someone to advise me what the nurse meant as it made me quite worried. I saw the photo and i could quite clearly see no folds. The nurse went to ask a doctor and she came back stating that is very possible that i has celiac disease. It then that put my mind at rest as i was kind of waiting for that response.

My question is does all this sound normal. I understand all the issues about villi plattening but not folds flatenning. What does this mean or is it the same thing?

Will these folds ever return to normal like the villi should.

God, i am so comfused and worried and dont know what to do, They said i should have the results in 3 weeks and dont know if i can wait that long.

2 weeks prior to the endoscopy i went gluten free and just this week i went back on gluten for the biopsy. During the gluten free period i had what i can only exlain as withdrawal symptoms as my head and hands were very disorientated but the stomach pain stopped hurting like it had done for 7 months. When going back on the gluten my head and arms cleared up pretty much the day after (had initial lower stomach pain for a morning). But my stomach pain returned.

Please can everyone help with suggesting what is going on.

Thanks everyone

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nikki-uk Enthusiast
nikki-uk
Posted

Loss of duodenum folds is indicative of celiac disease and quite common in untreated celiac disease.

Open Original Shared Link site is quite interesting!

Ultimately though you will have to wait until they've looked at your biopsies under the microscope for the 'official' dx of celiac disease. :)

whattodo Enthusiast
whattodo
Posted
  • Author
Loss of duodenum folds is indicative of celiac disease and quite common in untreated celiac disease.

Open Original Shared Link site is quite interesting!

Ultimately though you will have to wait until they've looked at your biopsies under the microscope for the 'official' dx of celiac disease. :)

Thanks for the reply so soon, i have had a look at the website and the photos in the middle of the page looked exactly like the one they showed me. I know i need to wait for the biopsy to be officially diagnosed but just for piece of mind wanted to know if these folds come back. This is not the same as villi flattening is it (i presume villi are only seen under the microscope)? What are the reasons for the folds?

nikki-uk Enthusiast
nikki-uk
Posted

The reduction of folds comes with villous atrophy.

Once established on the gluten-free diet they will come back (along with the villi)

You're right in saying the villi can only be seen under the microscope :)

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