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I Have A Question, How Long Before I Feel Better?

Guest tntownley

By Guest tntownley
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest tntownley
Guest tntownley
Posted

I have gone gluten free now for about three weeks, I am a diabetic and my blood sugars were sky high and uncontrolable, now gluten-free they are slowiy comming down... I had one that was 97!!!!! I have not seen anything under 100 for YEARS! This is exceiting, and my shaking has lessoned, I have only a few new water blisters so those all have gotten better.

My energy is still at ground zero... I could sleep 12 hours a day and not get enough... not that I do, I am a fairly busy person, at any one time I have 3 or more jobs... not right now though, I can barely keep up with ONE. My family is understanding but I am NOT, I want my life back.. is there something I am missing, has anyone else been here and know they way out??

Help me please!

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Ursa Major Collaborator
Ursa Major
Posted

You may have adrenal fatigue. Celiac disease all by itself can cause that, because it puts so much stress on the body. But working three jobs at a time on top of being diabetic and having celiac disease is really too much for anybody, and will wear out your adrenal glands. Because you'd have been running on adrenaline all those years, which is only meant for short bursts of energy, you could have worn out your adrenal glands.

It will take time and lots of rest to get your energy back, as well as healing from celiac disease. You might want to mention adrenal fatigue it to your doctor, as well as possibly a low functioning thyroid.

Of course, three weeks is not a very long time. It takes at least six months to heal from celiac disease, so you need to be patient.

tarnalberry Community Regular
tarnalberry
Posted

nutritional deficiencies also aren't resolved in three weeks.

not to mention the stress that can be placed on you in making the transition and trying to keep up with what you've been doing. (just the stress from trying to do 3 jobs alone will - eventually - wear you out. and I say that as someone who also thrives on hectic-ness and variety.)

pedro Explorer
pedro
Posted

Hi and welcome.

I've been in the gluten-free diet for a little more than 8 weeks, and I am still very tired, even taking a multi-Vitamins gluten-free twiece a day. Be patience give a chance to the diet and a chance to your body to heal.

I've spend almost 40 years damaging my body with gluten without knowing. Is going to take sometime before my body adjust, and feels better.

I hope you start feeling better, keep us informed.

Best regards to you.

Guest tntownley
Guest tntownley
Posted

Thank you all for your advise, I have never been a patient person... guess I am going to learn it now...

I have not even been diagnosed really, I had end and colonoscopy done and they found H pylori but said no Celiac, but my family Dr said I had enough symptoms to make it worth while to do the gluten-free diet.

And well for what ever reason my blood sugar is under control now and I dont have the weird water blister rash that I was told was excema...

Weather it is Celiac or not, I am not going back to gluten, I do feel better and my tremmors are getting less and less each day.

Just still very tired.

I will keep you posted, and again thank you for your help.

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      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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