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I Have A Question, How Long Before I Feel Better?

Guest tntownley

By Guest tntownley
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest tntownley
Guest tntownley
Posted

I have gone gluten free now for about three weeks, I am a diabetic and my blood sugars were sky high and uncontrolable, now gluten-free they are slowiy comming down... I had one that was 97!!!!! I have not seen anything under 100 for YEARS! This is exceiting, and my shaking has lessoned, I have only a few new water blisters so those all have gotten better.

My energy is still at ground zero... I could sleep 12 hours a day and not get enough... not that I do, I am a fairly busy person, at any one time I have 3 or more jobs... not right now though, I can barely keep up with ONE. My family is understanding but I am NOT, I want my life back.. is there something I am missing, has anyone else been here and know they way out??

Help me please!

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Ursa Major Collaborator
Ursa Major
Posted

You may have adrenal fatigue. Celiac disease all by itself can cause that, because it puts so much stress on the body. But working three jobs at a time on top of being diabetic and having celiac disease is really too much for anybody, and will wear out your adrenal glands. Because you'd have been running on adrenaline all those years, which is only meant for short bursts of energy, you could have worn out your adrenal glands.

It will take time and lots of rest to get your energy back, as well as healing from celiac disease. You might want to mention adrenal fatigue it to your doctor, as well as possibly a low functioning thyroid.

Of course, three weeks is not a very long time. It takes at least six months to heal from celiac disease, so you need to be patient.

tarnalberry Community Regular
tarnalberry
Posted

nutritional deficiencies also aren't resolved in three weeks.

not to mention the stress that can be placed on you in making the transition and trying to keep up with what you've been doing. (just the stress from trying to do 3 jobs alone will - eventually - wear you out. and I say that as someone who also thrives on hectic-ness and variety.)

pedro Explorer
pedro
Posted

Hi and welcome.

I've been in the gluten-free diet for a little more than 8 weeks, and I am still very tired, even taking a multi-Vitamins gluten-free twiece a day. Be patience give a chance to the diet and a chance to your body to heal.

I've spend almost 40 years damaging my body with gluten without knowing. Is going to take sometime before my body adjust, and feels better.

I hope you start feeling better, keep us informed.

Best regards to you.

Guest tntownley
Guest tntownley
Posted

Thank you all for your advise, I have never been a patient person... guess I am going to learn it now...

I have not even been diagnosed really, I had end and colonoscopy done and they found H pylori but said no Celiac, but my family Dr said I had enough symptoms to make it worth while to do the gluten-free diet.

And well for what ever reason my blood sugar is under control now and I dont have the weird water blister rash that I was told was excema...

Weather it is Celiac or not, I am not going back to gluten, I do feel better and my tremmors are getting less and less each day.

Just still very tired.

I will keep you posted, and again thank you for your help.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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