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I Have A Question, How Long Before I Feel Better?

Guest tntownley

By Guest tntownley
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

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Guest tntownley
Guest tntownley
Posted

I have gone gluten free now for about three weeks, I am a diabetic and my blood sugars were sky high and uncontrolable, now gluten-free they are slowiy comming down... I had one that was 97!!!!! I have not seen anything under 100 for YEARS! This is exceiting, and my shaking has lessoned, I have only a few new water blisters so those all have gotten better.

My energy is still at ground zero... I could sleep 12 hours a day and not get enough... not that I do, I am a fairly busy person, at any one time I have 3 or more jobs... not right now though, I can barely keep up with ONE. My family is understanding but I am NOT, I want my life back.. is there something I am missing, has anyone else been here and know they way out??

Help me please!

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Ursa Major Collaborator
Ursa Major
Posted

You may have adrenal fatigue. Celiac disease all by itself can cause that, because it puts so much stress on the body. But working three jobs at a time on top of being diabetic and having celiac disease is really too much for anybody, and will wear out your adrenal glands. Because you'd have been running on adrenaline all those years, which is only meant for short bursts of energy, you could have worn out your adrenal glands.

It will take time and lots of rest to get your energy back, as well as healing from celiac disease. You might want to mention adrenal fatigue it to your doctor, as well as possibly a low functioning thyroid.

Of course, three weeks is not a very long time. It takes at least six months to heal from celiac disease, so you need to be patient.

tarnalberry Community Regular
tarnalberry
Posted

nutritional deficiencies also aren't resolved in three weeks.

not to mention the stress that can be placed on you in making the transition and trying to keep up with what you've been doing. (just the stress from trying to do 3 jobs alone will - eventually - wear you out. and I say that as someone who also thrives on hectic-ness and variety.)

pedro Explorer
pedro
Posted

Hi and welcome.

I've been in the gluten-free diet for a little more than 8 weeks, and I am still very tired, even taking a multi-Vitamins gluten-free twiece a day. Be patience give a chance to the diet and a chance to your body to heal.

I've spend almost 40 years damaging my body with gluten without knowing. Is going to take sometime before my body adjust, and feels better.

I hope you start feeling better, keep us informed.

Best regards to you.

Guest tntownley
Guest tntownley
Posted

Thank you all for your advise, I have never been a patient person... guess I am going to learn it now...

I have not even been diagnosed really, I had end and colonoscopy done and they found H pylori but said no Celiac, but my family Dr said I had enough symptoms to make it worth while to do the gluten-free diet.

And well for what ever reason my blood sugar is under control now and I dont have the weird water blister rash that I was told was excema...

Weather it is Celiac or not, I am not going back to gluten, I do feel better and my tremmors are getting less and less each day.

Just still very tired.

I will keep you posted, and again thank you for your help.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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