Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Something Else Going On Here?


mamaloca2

Recommended Posts

mamaloca2 Apprentice

I was hoping someone might help me sort out why I have been feeling "out of it" and clumsey. I have been gluten free (besides a few mishaps) for 2 months now and have been improving. The last three days though, I have felt like I've been drifting through a dream and I am feeling clumsey (mostly my hands) and a little dizzy from time to time. This fogginess in my head is really bothering me because I feel like I have had too much to drink or something. I can 't think of anything I have eaten lately that could have had gluten in it. I'm afraid to pick up my kids or drive anywhere. Hope someone can help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest KG in FL
I was hoping someone might help me sort out why I have been feeling "out of it" and clumsey. I have been gluten free (besides a few mishaps) for 2 months now and have been improving. The last three days though, I have felt like I've been drifting through a dream and I am feeling clumsey (mostly my hands) and a little dizzy from time to time. This fogginess in my head is really bothering me because I feel like I have had too much to drink or something. I can 't think of anything I have eaten lately that could have had gluten in it. I'm afraid to pick up my kids or drive anywhere. Hope someone can help.

I feel that way quite often. I blame it on the celiac. But I have learned by reading these messege boards here that the others celiacs seem to be MUCH better at taking thier multi vitamins and B-12. And from what I've read, this helps a lot.

I take my vitamins about 3 days in a row, about twice a month. ONCE in a while I go about 7 days in a row. From what I have read about what you describe, this would be the first and easiest thing to try, if you aren't already.

I've got to get better at these vitamins!!! There is a thread today regarding the people who sleep all the time and are groggy. Vitamens seem to help a lot.

I am sure a lot more advice will follow on this... Good luck!

CarlaB Enthusiast

Have you had blood work done? Could you be anemic? B12 is another good suggestion. I'd get the blood work done to be sure everything's right.

Brain fog can be a result of your body not being able to keep up with detoxing the toxins, for whatever reason. Maybe if you're eating significantly better than you were before you body might be "cleaning house".

Keep on the diet. Have your blood checked out. If you don't continue to progress, then I'd start looking at what else might be going on.

I can totally relate to what you're saying ... my brain fog and vertigo are horrible.

Emily Elizabeth Enthusiast
I feel like I have had too much to drink or something.

If it's any consolation, you're not alone! I feel the same way. Right now actually! It's like I've had a couple of glasses of wine (but don't feel the positive mood effects) and my eyes are sensitive to light. I feel like I'm dropping the ball so to speak at work as a result. I just can't focus on anything for very long. I've been taking Centrum Performance vitamins and a calcium supplement with vitamin D everyday. I seem to feel much better when I'm at home on the weekends, I have minimal fog and my intestines behave better if you know what I mean. Just not as much. I'm wondering if I'm getting glutened too or maybe if work is just stressing me out (I don't feel that it is though). I've been trying to be gluten free for about a month now.

CarlaB Enthusiast

EmilyElizabeth, have you been "trying" to be gluten-free for a month, or have you been gluten-free for a month? There is a difference! Trying usually is a code word for not really doing it. ;)

If gluten is the problem, the brain fog will go away, give it time. If after a few months it doesn't go away, then start looking for what else might be wrong. Healing takes time. You didn't get this way overnight, and you won't get better overnight either. Patience. Compliance --100%!

mamaloca2 Apprentice
Brain fog can be a result of your body not being able to keep up with detoxing the toxins, for whatever reason. Maybe if you're eating significantly better than you were before you body might be "cleaning house".

I am eating better, and the vitamins I'm taking are powerful detox vitamins. Maybe that is what is going on. I feel better this afternoon for the first time. I have not had blood work done on me. If this continues though, I think I'd better.

You have been a terrific help Carla, more than once. Thank you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.