Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired All The Time


SandyC

Recommended Posts

SandyC Newbie

Hi,

I'm fairly new to this forum. Need some suggestions. I have been gluten free for several months. Well mostly, except for the accidental glutening from an unsuspected medication. My concern is tiredness. I can get 8-10 hours of sleep and I still am tired. I am on Effexor for depression, which helped a lot! I also take a multi vitamin, eat a healthy diet. Most of my symptoms of celiacs have subsided. I just have this incredible fatigue. I have absolutely no energy. I feel like I need a nap, all the time!

My other question is this. My multivitamin , Nature Made Multi for Her has 250 mg of Calcium and over 1000 IU of Vitamin D. If I suppliment with Nature Made Advanced Calcium I get even more Vitamin D. It seems to me that Vitamin D is one of the vitamins that stores up and you can become toxic if you get too much. Most vitamins if you get too much are excreted but not Vitamin A, D, E, and K. They store in the fat cells. I'm afraid that in order to get all my needed Calcium, I will get too much Vitamin D. Any suggestions? I figure that I need to get at least 750 mg of Calcium to meet the minimum requirement of 1000 mgs. If I Suppliment my Calcium I end up getting 1400 I.U's of Vitamin D in addition to my diet.

I'd welcome any suggestions.

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Sandy, lots of things can cause fatigue. Lack of magnesium is one of them. You should never take calcium without magnesium.

Low vitamin D is another thing that could cause fatigue (besides many other problems). You are right, if your vitamin D is good, you shouldn't supplement with too much. That is why you should never take high doses of vitamin D without first checking your levels of it.

Low levels of iron, or vitamin B6 or B12 could be another problem.

It sounds to me like you need to get some bloodwork done, to determine your levels of essential nutrients. Every person diagnosed with celiac disease ought to do that. Get your levels of vitamin D, calcium and magnesium, vitamin K, ferritin (iron), vitamin B6 and B12 and your hemoglobin checked. Then you will know where you need to supplement, and how much is needed.

Lastly, you may be suffering from adrenal fatigue or hypothyroidism, or both. It would be good to be tested for those as well.

loraleena Contributor

I would get your thyroid checked. Read up on symptoms of hypothyroidism. Make sure you get the whole panel including thyroid peroxidase antibodies (show the autoimmune version of the disease). This is very common in celiacs.

SandyC Newbie

Thank you both for responding. I have had my bloodwork done. My calcium is on the low end of normal, that's why the doctor suggested supplimenting my calcium and taking a good multi vitamin. My bone density results were not good. It is real obvious that I haven't been absorbing enough Calcium. Obviously the result of the Celiacs. It just seems odd to me that my multi vitamin has over 1000 IU's of Vitamin D (250% of Daily Value) but only has 250 mg of Calcium and only 100 mg of Magnesium (which is only 25% of needed daily value). My Calcium Suppliment has 500 mg of Calcium, 250 mg of Magnesium and 200 mg of Vitamin D. In order to get 1000 mg of Calcium a day, I would end up getting 475 mg of Magnesium which is over 150% of the Daily Recommended Value, and well over 1300 mg of Vitamin D which would be over 325 % of Daily Value. That just seems like an awful lot of Magnesium and Vitamin D. My thyroid and adrenals are also fine. I tend to be a little bit anemic, which could be what is causing it. I was just curious if this was just par for the course and when my body "normalizes" I'll feel better or if there was some suppliment I was missing. I am also taking acidophilus, which has helped a lot. Any other suggestions are welcome.

Thank you both again.

Sandy

CarlaB Enthusiast

Anemia, even slight anemia, will definately cause fatigue. Do all you can to get this fixed!

I take NT Factor for fatigue. You can Google it ... but the full-strength stuff can only be purchased through a doctor.

Nancym Enthusiast

Vitamin D in a dry form is virtually worthless. If you're going to supplement it be sure to get the sort that is oily and says cholecaliferol.

For the fatigue I'd start suspecting an autoimmune disease. Talk to your Dr. about it. It might be thyroid, or something else, most of them make you fatigued.

tarnalberry Community Regular

RDA's are far from gospel (many times they were picked out of thin air - such as the one for sodium).

Magnesium should be in a 1:2 ratio with calcium - so if you're supplementing 1000mg of calcium a day, you take 500mg of magnesium along with it.

More useful is knowing the toxic levels of vitamins, and the RDA is not that - it's merely the minimum amount needed to not get sick - which by American standards, is *not* the same as the amount needed to stay healthy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SandyC Newbie

Thank you all!! I've learned more in a few posts than I ever learned from the doctor and the dietician at the hospital. Sandy

loraleena Contributor

How are your B-12 levels. The RDA is way to low. You can not overdose on B12, so try a sublingual version.

SandyC Newbie

Started taking the Subling. B12. and increased my iron intake. Feeling much better. Thank you all for your suggestions

Sandy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    3. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748

    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.