Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Iowa


Calle

Recommended Posts

Calle Rookie

Hi Everyone,

I was wondering if there is any support groups near Des Moines, Iowa? I am newly diagnosed after being misdiagnosed with IBS for 25 years.

Calle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceAddict Rookie

Hey Calle,

Welcome to the group. I am way up in Decorah, but I do remember someone telling me about a support group around Ames. It was just so far away that I file 13'd it. lol. Sorry I couldn't be of more help. If you ever find your way up this direction give me a shout.

missy'smom Collaborator

The following thread has a list of support groups in IA that I ran across while searching for my sister. I live out of state. I contacted the one for Waverly this year and they were very helpful in getting me in touch with a Cedar Rapids support group, which is not on that list.

Open Original Shared Link

Calle Rookie
The following thread has a list of support groups in IA that I ran across while searching for my sister. I live out of state. I contacted the one for Waverly this year and they were very helpful in getting me in touch with a Cedar Rapids support group, which is not on that list.

Open Original Shared Link

Thanks for the info. I'm doing okay with the diet from doing my own research and reading a number of books. I just thought it would be nice to be able to meet with others for support and different ideas or tips on eating this way. I have noticed that eating gluten free the items are not enriched with vitamins like your other grain products, which concerns me because I already have a malabsorption problem with vitamins/minerals. I guess I will just have to supplement, but I have to be careful in what I take because my stomach is so sensitive when it comes to vitamins and minerals.

missy'smom Collaborator

You might want to try a powdered supplement. I take one by Rainbow Light called Healthy family Multi-Vitamin. It's easy on my stomach. It's a little expensive but I'm planning to switch back to tablets, if they are cheaper,now that my system has healed more.

  • 1 year later...
aliciatakescare Newbie

I am in Aurelia, Iowa and have been looking for other Iowans to gather and support one another. I live approximately 1.25 hrs east of Sioux City, IA. Hy-Vee has been very helpful and is special ordering different things and is much cheeper than specialty stores.

missy'smom Collaborator

Hi alicia and welcome. I hope you'll find this community to be as supportive as I have. :)

Have you found a doc., especially a GI doc near Sioux City that is knowledgeable about celiac disease?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aliciatakescare Newbie

No, maam, i have just been going with my family practitioner so far. i was diagnosed in feb 2008. where are you from?

Hi alicia and welcome. I hope you'll find this community to be as supportive as I have. :)

Have you found a doc., especially a GI doc near Sioux City that is knowledgeable about celiac disease?

missy'smom Collaborator
No, maam, i have just been going with my family practitioner so far. i was diagnosed in feb 2008. where are you from?

Thank you for the reply. I currently live out of state but I have a family member who lives in the area.

jjdthmpsn Rookie

Hello everyone. I live in Sioux City and just went to a GI doctor yesterday. He is located in Dakota Dunes, South Dakota which is about 1-2 miles from sioux city. So if you are looking for a doctor you can (pm) me and I can give you his name. I go to get my biopsy done on Monday.. Yikes.... My son was diagnosed with celiac about 2 months ago. My other two children go up to Sioux Falls in December , so i guess we will see. Hope to get to know all of you :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.