Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Belly Symptoms Today


bakinghomesteader

Recommended Posts

bakinghomesteader Contributor

I have stuck the the gluten free diet as far as I know. Have been feeling pretty good until yesterday eve. Yesterday eve I had extremely bad stomach pain. It was hard to walk. I was really tired and felt horrible. This is what I had different yesterday---blue bunny big fudgsicle and a few bites of a regular hershey bar. Also, today I took some generic Mestinon for my Myasthenia Gravis (was just feeling pretty tired and weak) Today I am so bloated, couldn't go potty today, heartburny, tired, fogged, etc. Could the generic Mestinon have gluten in it somewhere? It is Pyridostigmine Bromide (probably really misspelled) Or is it the other things?

I just can't pinpoint it. All I know is I HATE this feeling!! :( Could someone help?

Bakinghomesteader


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I don't have any info on the other products you used, but keep in mind that you have been on the diet for a very, very short amount of time. If you have Celiac, your body hasn't healed, and hasn't started absorbing nutrients, etc. You *may* be eating gluten free, but your body is still having trouble digesting certain things.

This is all just something to remember, if you rule out that you had some gluten in something, etc. I was still having symptoms and it wasn't the gluten that was the problem, it was the lack of healing.

Hopefully someone else will chime in with some other suggestions. And, of course, hope you feel better!!!!!

AndreaB Contributor

I'd call the pharmacy to see if anything in the generic meds could be the problem. Is this generic new? Do you normally not have the generic brand? Some people don't do well with generics.

bakinghomesteader Contributor

anyone know about the blue bunny or hershey's

Thanks

angel-jd1 Community Regular
anyone know about the blue bunny or hershey's

Thanks

I use both blue bunny and hershey's frequently. Blue bunny will clearly list any ingredients on their label. Here is the statement from their website reguarding gluten:

Information about Gluten

Federal Definition of "Gluten-Free"

The January 23 edition of the Federal Register contained a notice of proposed rule making to define the use of the term "gluten-free" for voluntary use for food labeling, to mean that the food does not contain any of the following: An ingredient that is any species of the grains wheat, rye, barley or a crossbred hybrid of these grains, an ingredient derived from them and that has not been processed to remove the gluten, or that has been processed to remove the gluten but more than 20 ppm remains. In addition, a food made from oats that bears a gluten-free claim in its labeling would be deemed misbranded if the claim suggests that all such foods are gluten-free or if 20 ppm or more of gluten is present in the food.

Gluten Content of BLUE BUNNY

bakinghomesteader Contributor

Thanks for the reply. I didn't have the urge to go. I just haven't gone. I am usually like that. For instance, before being gluten free I would not go for 3-5 days even a week. But after starting the diet, I was going 1 to 2 times a day normal consistancy. I just feel like something aggravated it now. It could be dairy, I never thought about that. I will eliminate it for a while and see what happens.

I had a colonoscopy and it was fine except for some irritation or inflammation in parts. I really couldn't tell ya, because he told me while I was sedated and I don't even remember him telling me. My mom told me. He just sent me on my way. I do drink plenty, too. Thanks for the input.

Bakinghomesteader

costellosfriend Rookie

Hi baking:

I've been on a gluten free diet for a couple of weeks. I haven't been diagnosed with celiac or gluten intolerance. I just wanted to see if the gluten-free diet would help with some "issues" I'm having. :rolleyes: After a short improvement in my problems, I started having a lot of tummy pain, gas, D, strong urge to defecate - more than I had been having before the gluten-free diet.

I am in the habit of eating Blue Bunny vanilla ice cream with Hershey's chocolate syrup every night before going to bed. I eliminated that - and the minimal amounts of other dairy I eat - two days ago and haven't had tummy problems since. I read that lactose intolerance can accompany celiac but that some people can tolerate dairy after being gluten-free for 6 months or so.

If this diet resolves the problems I'm having (and it seems to be working for me), I'll try adding dairy back in later.

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,246
    • Most Online (within 30 mins)
      7,748

    Candice Phoenix
    Newest Member
    Candice Phoenix
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...