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5 Yr. Old Daughter, Possible Diagnosis


maryliz

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maryliz Newbie

She had been having chronic diarrhea for a month...

At first I thought it was a bug, I gave her pepto (half of a chewable pill), then it would come and go, then the diarrhea came back full force, and the pepto no longer worked. Took her to the doctor, he said to try a gluten free diet for a week and come back...it has been 2 days, she is already better!

Now, I just have to learn about this new style of eating my duaghter is going to adapt to.


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tarnalberry Community Regular

Welcome to the board. Depending on your normal cooking style, a gluten-free diet may or may not be easy to jump into full force, but the celiac.com site has some great lists of safe/unsafe food. Even the most well prepared of us make mistakes at times too, so don't feel too bad when you make a slip. It's great that you've found something that will make her feel better!

MySuicidalTurtle Enthusiast

A week is not that long to try for especially since the beinging is filled with mistakes and learning! You'll get a hang of the diet. I hope your daughter starts feeling better soon.

celiac3270 Collaborator

It's definitely too soon. I tested positive for celiac disease and I've been on the diet for eight months and I'm still not better. Give it at least 2-3 months in my opinion. Kristina's right; it usually takes longer than a week to see any results.

Guest barbara3675

Here is a printout that you can use to shop at the grocery store. The people that put in on the internet do it just as a service because they care about celiac people. It was updated in September, I just copied it off today. It is 51 pages long and you have to have Adobe Reader to copy it but that is easy to do, you just have to go to Adobereader.com and download their free offering. It is well worth whatever you have to go through to get all of this free stuff. I use this list whenever I am wondering about a product at the store. I read labels too, of course, but in the beginning, this is very helpful. Also you can go to the health food store, they have mixes that make cakes and things that are pretty darn good that will help you fix things that are close to normal eating. I made corn spaghetti the other day with homemade spaghetti sauce....I liked it a lot. The printout is:

www.napervillegi.com/celiac/gffoodlist.pdf

Best of luck to you in your new adventure in eating, it can be done if you do it with a positive attitude.....Barbara

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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