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Is There A Connection?/female Question


Ryniev

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Ryniev Apprentice

I've always had horrible, miserable periods with the most painful cramps ever. I've been off gluten for about 2 months now and when I had my last period, I barely even noticed. I had slight cramps, didn't need to dose myself up with Ibuprofen and take to my bed and the mild cramps were gone in about 12 hours as opposed to the usual 48. I wasn't mean and crabby, I wasn't bloated, I didn't have a lower backache, nothing.

In the past, my OB/GYN has prescribed medicine including anti-depressants, tested for fibroids and even suggested a hysteryctomy if it really bother me that much (no thanks). If tried fish oils, evening primorose oil and other natural stuff and nothing has EVER helped. EVER. Until I gave up gluten.

In short, for the first time in 27 years (minus pregnancy and breastfeeding) I didn't have to practically stop my life because of my period.

Anyone else experience anything like this? It was nothing short of a miracle for me. Could there possibly be a connection?


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BRUMI1968 Collaborator

I think that when I quit wheat and dairy two years ago, I noticed a change in my periods - even easier than before (I've been blessed with "barely" periods for some time now). Lately I've been getting BAD cramps for the first day (I'm a bit over a year gluten-free) -- but it could be the amount of eggs I'm eating. I once read a theory about how women should not eat the reproductive byproducts of other animals. So this month I'm going to experiment with the egg thing and stop eating them the week before my period.

Also, when I first went gluten-free, I thought my periods actually increased in flow a little bit the first two or three days. I thought it might be hormones evening out. But now they are back to practically nada...so much so that I can't use tampons.

Anyway. Yahoo for you! Periods shoudl not be miserable...they are supposed to be a miracle. Maybe living in a culture that frames them as punishment and a curse adds to our problems.

-Sherri

Rosewynde Rookie

I'd been wondering if there was a connection too. My flu like problems seem to get worse the week before I start my period and only start getting better a day or two after. Supposedly from what I've read, when Celiac's Disease shows up latter in your life it's usually triggered by pregnancy, a flu virus, or some other major stress. Maybe the hormone swing and stress of periods affects it too. I'm not a doctor though so this is pure guesswork on my part ; D

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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