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I Think I Might Have Celiac Disease.


NickP

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NickP Newbie

Hi everyone :)

Thanks for the helpful site. From reading around on the web I think I may have celiac disease. In the last week or two I've had stomach cramps; bouts of diarrhea, occasional nausea, tiredness, aching muscles - other times I feel fine though. Since a teenager I've always had trouble putting on weight (I'm 22 years old now 6ft2 155lbs) despite eating a lot and always feeling hungry. Also I get a strange reaction to beer/lager/ale even on a few sips - I get a sort of head cold yet when I have gin or cider I don't feel any adverse effects. I'm going to read up on gluten free diets and try one out to see if I feel better. Do my symptoms sound like I may have celiac disease? Or maybe just a wheat intolerance.

Thanks for any replies in advance.

Nick.


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CarlaB Enthusiast

Welcome, Nick.

Before you go off gluten, go to your doctor and get a celiac panel done. You have to be eating gluten for the celiac testing to be valid, so it's best to do it before you go gluten-free.

mftnchn Explorer

Agreed. You'll want to do any testing first if you can. Then even if the tests are negative, try the diet. The testing doesn't pick up every celiac or gluten sensitive person.

Meanwhile, it does take a lot of preparation to do the diet well. You will need to also replace some kitchen items and check all personal care products for gluten. So you could do the research and start making a plan while you are doing your testing.

The other thing is that you may not have an immediate positive response to the diet, sometimes it takes many months. Some people are lucky and have a quick improvement though.

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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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