Fed Up With My Doctor

[JessieFree]

I had a positive biopsy so my GI told me to go gluten-free. I did for 2 weeks (without improvement) I called him today to check on my blood work and he said it was negative so now he wants me stay of dairy and try another medication. He says he'll have to look for something else and not to worry about going gluten-free any more. He didn't even call to give me the results I had to call him and leave him like 3 different messages before he would get back to me. The last time I went in he told me he would want me to stay gluten-free even if the blood test was negative now he isn't saying that. What is going on I feel like a lab rat and nothing is working! I just want to know whats wrong with me so I can fix it.

[aikiducky]

It's very common in adults for the blood tests to be false negative. If you have a positive biopsy you really need to stay gluten free, and you need to give it more time!

Pauliina

[Guest j_mommy]

Biopsy is the "gold standard" for testing celiac. I would definetly stay gluten free, For some it does take awhile to start feeling better. Be sure you're not eating any gluten...hidden gluten ect or getting CC'd~~~

[BRUMI1968]

I ditto the other folks -- AND note that dairy should probably be stopped too. Lots of folks with Celiac Disease have difficulty with dairy, in part because the lactase required to digest lactose (the sugar in milk) is secreted through the very parts of your small intestine that are squished and not working so well. Lots of us are also reactive to casein (the protein in milk). I think all folks who try gluten-free who have any remaining issues, should go dairy free for a spell too, see if that doesn't clear things up.

I know when I quit dairy, my constipation virtually vanished.

Anyway, good luck to you. Remember that doctors can't know everything about everything, and in the United States, knowledge about Celiac is WAY BEHIND THE TIMES. (My doctor told me I was "mildly" celiac, which isn't even possible - that would be like being slightly pregnant.)

Good luck.