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Blood Test?


EBsMom

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EBsMom Apprentice

My 9 yo dd has been gluten-free/cf for 1 month. Her Enterolab results came back with elevated tTg, sensitivity to gliadan/casein and elevated fecal fat. My dh is questioning the results because Enterolab isn't "mainstream" and he now wants to take her to an "expert" (I don't agree, but that's another topic.) If we took her to a Dr. now, do you think there's any way that a blood test would come back positive without doing a gluten challenge? She has had an overwhelmingly positive response to the diet, and I am loathe to make her sick again, just to get a "definitive" diagnosis. As far as I'm concerned, her dietary response alone is enough to convince me. Any thoughts?

Rho


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aikiducky Apprentice

It's really impossible to say. It might take a few months for antibodies to disappear from blood completely, but then it would depend on how high the number had been originally, and that of course you don't know.

An overwhelming response to the diet should speak volumes, though...

Pauliina

Guest Chrisbee

My son's been gluten-free since March and his gastro took a blood test last week. I told him it wouldn't show anything because we've been off gluten for so long, but he said it takes about six months. I don't know....that goes against what I've read, but I'll guess we'll see. The results should be in within the next couple of days and I will post them. His sister had a negative blood test and a positive biopsy, so his could be negative for that reason too. Either way, I'm keeping him gluten free.

Guest Chrisbee

Sigh...my sons tests all came back negative according to his gastro's nurse. Even the gene test, so I don't know if the other tests would have shown anything even if we would have been consuming gluten over the last few months.

I'm not going to go ahead with the biopsy at this time because I feel with us being gluten free for so long, that it will be negative too.

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    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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      Thank you this really helped. 
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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