Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed!

barbara123

Recommended Posts

barbara123 Apprentice
barbara123
Posted

Hey Everyone

I got my results today, I am positive for celiac I have mixed feelings about this, I am so happy that I found out what was wrong with me. Didn't really want this but at least now I know that I am not crazy!!!

Guess now I will have to do more studying and be more vigilant on my diet!

:huh:

I have already learned so much from yall Thank you so much

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Congratulations on getting answers! When I finally got diagnosed (with Lyme, I'm non-celiac gluten intolerant), we went out to celebrate knowing what was wrong ... not the confirmation that I was sick, but the hope that I could get better. I understand how you feel -- relieved.

Rosewynde Rookie
Rosewynde
Posted

I know how you feel! * cheers * I was thrilled when they finally pegged down the cause of my years of problems. Keep researching, there is a lot of very good information out there to find. Feel free to ask questions too. Sometimes you get mixed information with internet searches and asking questions here can clear up confusion. Besides, I get the majority of the answers to my questions by reading posts from others that have similar problems ; D

sherryGF Newbie
sherryGF
Posted

Barbara, I'm thrilled you finally got some definitive answers! There's nothing more frustrating that to know something's wrong, and not get any answers from the health care professionals!!! I've been gluten-free for 7 years now, but was originally mis-diagnosed with Crohn's for over 10 years! I, too, am going through some health "issues" right now, with no definitive answers--VERY frustrating! Best of luck to you & your new diet! Hope you'll be feeling better soo!

cmom Contributor
cmom
Posted

I agree. I need to go to the doctor about some issues I'm having like unexplained weight gain, etc. I have not made an appt yet b/c I don't think I would be taken seriously. I predict I will hear "well, you are getting older and closer to menopause and that's just the way it happens." There are 2 women nurse practitioners that I trust so I may request one of them instead. MEN! :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.