Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Dairy Problem

Samanthasmomma

Recommended Posts

Samanthasmomma Apprentice
Samanthasmomma
Posted

I am feeling better since going gluten free, but I am still having D. Im thinking of going without dairy for awhile to see if that is a problem as well as gluten. How long do you think it will take to feel better if dairy is a problem? My quess is one to two weeks. Can I use soymilk as a substitute for milk? My last question is what else do I need to watch out for on a dairy free diet? I hope this makes sense...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I am feeling better since going gluten free, but I am still having D. Im thinking of going without dairy for awhile to see if that is a problem as well as gluten. How long do you think it will take to feel better if dairy is a problem? My quess is one to two weeks. Can I use soymilk as a substitute for milk? My last question is what else do I need to watch out for on a dairy free diet? I hope this makes sense...

It does take some time to feel better and I'm glad that you are. If you villi are damaged it is very hard to digest dairy, so that is why it is recommended to at least be dairy light or eliminate it all together.

Some people feel better almost immediately and others like myself it took 2 months for the D to subside in order to leave the house. I have been gluten free for two years and still find it a challenge.

There are always things ready to get you. I have been cooking for an elderly friend and using her pots and pans and have been sick for several days now. Gluten can hide everywhere.

It is hard to tell in the beginning when you will be able to feel better. Your intestines needs to heal. It took some time to do the damage and equally, time to heal.

Soy milk would be a good substitute for milk and look out for "whey" when you are reading labels - it is dairy derived.

Keep it up and one day you will realize that you DO feel good.

Rosewynde Rookie
Rosewynde
Posted

Check labels like crazy for any of the non dairy products. Soy, rice, or almond milks are a good substitute but often have gluten as a part of their processing or are made in a factory that makes other gluten containing products so there is potential for cross contamination.

There are the obvious dairy things to watch for such as, milk, cheese, and butter. You also have to watch out for whey and lactose. There's also another one that can be problems for some that is a milk protein but can't remember the spelling . . . cassien?

sfm Apprentice
sfm
Posted
Check labels like crazy for any of the non dairy products. Soy, rice, or almond milks are a good substitute but often have gluten as a part of their processing or are made in a factory that makes other gluten containing products so there is potential for cross contamination.

There are the obvious dairy things to watch for such as, milk, cheese, and butter. You also have to watch out for whey and lactose. There's also another one that can be problems for some that is a milk protein but can't remember the spelling . . . cassien?

It's casein - a protein in milk. Sometimes you can have a sensitivity to casein, also (I do) - which means that I'll always have a problem with dairy :( (I think I miss that more than the gluten).

Sheryll

sherryGF Newbie
sherryGF
Posted

I definately think that it would be wise to leave off the dairy products for now, until your small intestine heals further. I've been gluten-free for 7 years, and until the past 6 months, had never had any problem with dairy foods! However, testing shows that I have an immune response to casein, so I've had to give up dairy, which is at least as difficult as giving-up gluten! The soy milk wasn't bad at all, but I got sick with it, too, so I'm just trying to deal with it--haven't tried rice milk or hemp milk yet! Good luck!

jlr Apprentice
jlr
Posted

I am so glad that I happened on to this thread - I have been gluten free for 2 years now but I still have bouts of D - I never made the connection that the damaged villi would have problems tolerating other items. I thought if the villi were healed I would back to normal (whatever normal is?).

Is lactose the next thing on the elimination diet for me to get rid of?

I am sorry to hear that others are stilling having D as well - but it is comforting to know I am not the only one.

Thanks,

Janet

TrillumHunter Enthusiast
TrillumHunter
Posted

I gave up dairy as well. I have tested it a couple of times and it is the culprit. I even bought some Lactaid to see if it was lactose. I choose to avoid for now but if I am really wanting ice cream I know I can have it with the Lactaid. So far I've been able to resist. I figure my poor intestines need a break after all those years of damage!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


somegirl2004 Newbie
somegirl2004
Posted

In order to test for lactorse intolerance, my doctor suggested that I completely get rid of it for three days and then have a giant glass of milk on the fourth day to see if my symptoms (diarrhea and lots of gas) came back.

Too bad I'm from Wisconsin (born and raised with some of the best dairy products around) and haven't yet brought myself to try testing for lactose intolerance! :rolleyes: I made it about 13 hours before someone was shoving cheese down my throat!

Anyway, good luck!

-- Erin

Samanthasmomma Apprentice
Samanthasmomma
Posted
  • Author

Thank you everyone, for your help. I have been dairy free for one week and am feeling better. This too is a learning process and has had quite a few setbacks, but those have just reinforced the need to stay dairy free. I am hoping that someday I will be able to add it back to my diet, but I am gratefull to be feeling a little better right now. I just cant wait untill I feel great again.

HannahHannah Apprentice
HannahHannah
Posted
Thank you everyone, for your help. I have been dairy free for one week and am feeling better. This too is a learning process and has had quite a few setbacks, but those have just reinforced the need to stay dairy free. I am hoping that someday I will be able to add it back to my diet, but I am gratefull to be feeling a little better right now. I just cant wait untill I feel great again.

I love this forum :):):)!! It's so good to have people who know what we're all going through, and aren't embarrassed to talk about the more unsavoury symptoms of being glutened!

Dairy is a problem for me also - nowhere near as much as gluten, e.g. I don't get pain when I eat dairy. I decided to test it out one day and drink a load of milk (about 2 pints) and see what happened! And lo and behold, our old friend D turned up!

Isn't it something to do with the enzyme used to break down dairy (or lactose) is impaired by the damage to the intestines?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    yfuvhg
    Newest Member
    yfuvhg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.