Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Dairy Problem

Samanthasmomma

Recommended Posts

Samanthasmomma Apprentice
Samanthasmomma
Posted

I am feeling better since going gluten free, but I am still having D. Im thinking of going without dairy for awhile to see if that is a problem as well as gluten. How long do you think it will take to feel better if dairy is a problem? My quess is one to two weeks. Can I use soymilk as a substitute for milk? My last question is what else do I need to watch out for on a dairy free diet? I hope this makes sense...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I am feeling better since going gluten free, but I am still having D. Im thinking of going without dairy for awhile to see if that is a problem as well as gluten. How long do you think it will take to feel better if dairy is a problem? My quess is one to two weeks. Can I use soymilk as a substitute for milk? My last question is what else do I need to watch out for on a dairy free diet? I hope this makes sense...

It does take some time to feel better and I'm glad that you are. If you villi are damaged it is very hard to digest dairy, so that is why it is recommended to at least be dairy light or eliminate it all together.

Some people feel better almost immediately and others like myself it took 2 months for the D to subside in order to leave the house. I have been gluten free for two years and still find it a challenge.

There are always things ready to get you. I have been cooking for an elderly friend and using her pots and pans and have been sick for several days now. Gluten can hide everywhere.

It is hard to tell in the beginning when you will be able to feel better. Your intestines needs to heal. It took some time to do the damage and equally, time to heal.

Soy milk would be a good substitute for milk and look out for "whey" when you are reading labels - it is dairy derived.

Keep it up and one day you will realize that you DO feel good.

Rosewynde Rookie
Rosewynde
Posted

Check labels like crazy for any of the non dairy products. Soy, rice, or almond milks are a good substitute but often have gluten as a part of their processing or are made in a factory that makes other gluten containing products so there is potential for cross contamination.

There are the obvious dairy things to watch for such as, milk, cheese, and butter. You also have to watch out for whey and lactose. There's also another one that can be problems for some that is a milk protein but can't remember the spelling . . . cassien?

sfm Apprentice
sfm
Posted
Check labels like crazy for any of the non dairy products. Soy, rice, or almond milks are a good substitute but often have gluten as a part of their processing or are made in a factory that makes other gluten containing products so there is potential for cross contamination.

There are the obvious dairy things to watch for such as, milk, cheese, and butter. You also have to watch out for whey and lactose. There's also another one that can be problems for some that is a milk protein but can't remember the spelling . . . cassien?

It's casein - a protein in milk. Sometimes you can have a sensitivity to casein, also (I do) - which means that I'll always have a problem with dairy :( (I think I miss that more than the gluten).

Sheryll

sherryGF Newbie
sherryGF
Posted

I definately think that it would be wise to leave off the dairy products for now, until your small intestine heals further. I've been gluten-free for 7 years, and until the past 6 months, had never had any problem with dairy foods! However, testing shows that I have an immune response to casein, so I've had to give up dairy, which is at least as difficult as giving-up gluten! The soy milk wasn't bad at all, but I got sick with it, too, so I'm just trying to deal with it--haven't tried rice milk or hemp milk yet! Good luck!

jlr Apprentice
jlr
Posted

I am so glad that I happened on to this thread - I have been gluten free for 2 years now but I still have bouts of D - I never made the connection that the damaged villi would have problems tolerating other items. I thought if the villi were healed I would back to normal (whatever normal is?).

Is lactose the next thing on the elimination diet for me to get rid of?

I am sorry to hear that others are stilling having D as well - but it is comforting to know I am not the only one.

Thanks,

Janet

TrillumHunter Enthusiast
TrillumHunter
Posted

I gave up dairy as well. I have tested it a couple of times and it is the culprit. I even bought some Lactaid to see if it was lactose. I choose to avoid for now but if I am really wanting ice cream I know I can have it with the Lactaid. So far I've been able to resist. I figure my poor intestines need a break after all those years of damage!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


somegirl2004 Newbie
somegirl2004
Posted

In order to test for lactorse intolerance, my doctor suggested that I completely get rid of it for three days and then have a giant glass of milk on the fourth day to see if my symptoms (diarrhea and lots of gas) came back.

Too bad I'm from Wisconsin (born and raised with some of the best dairy products around) and haven't yet brought myself to try testing for lactose intolerance! :rolleyes: I made it about 13 hours before someone was shoving cheese down my throat!

Anyway, good luck!

-- Erin

Samanthasmomma Apprentice
Samanthasmomma
Posted
  • Author

Thank you everyone, for your help. I have been dairy free for one week and am feeling better. This too is a learning process and has had quite a few setbacks, but those have just reinforced the need to stay dairy free. I am hoping that someday I will be able to add it back to my diet, but I am gratefull to be feeling a little better right now. I just cant wait untill I feel great again.

HannahHannah Apprentice
HannahHannah
Posted
Thank you everyone, for your help. I have been dairy free for one week and am feeling better. This too is a learning process and has had quite a few setbacks, but those have just reinforced the need to stay dairy free. I am hoping that someday I will be able to add it back to my diet, but I am gratefull to be feeling a little better right now. I just cant wait untill I feel great again.

I love this forum :):):)!! It's so good to have people who know what we're all going through, and aren't embarrassed to talk about the more unsavoury symptoms of being glutened!

Dairy is a problem for me also - nowhere near as much as gluten, e.g. I don't get pain when I eat dairy. I decided to test it out one day and drink a load of milk (about 2 pints) and see what happened! And lo and behold, our old friend D turned up!

Isn't it something to do with the enzyme used to break down dairy (or lactose) is impaired by the damage to the intestines?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
    2. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    3. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    4. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    5. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748
    tiffhorn14
    Newest Member
    tiffhorn14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.