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kalikohl

Mini Test From A Newbie

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Quick Background- I have had Crohn's Colitis since Summer of 2005. Recently I've had a few things that are making me and my doctor think I may have C.D.

So today I decided to do a mini-test. I ate nothing with gluten. Applesauce, celery with hummus, shiska-bobs and brown rice and a tofutti ice cream dessert. And I actually feel human. I'm not super tired, I didn't have a bad headache, and like my stomach isn't super swollen.

Is this normal? Do you really feel better like right away or am I grasping at straws?

thanks for any info you can provide.

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Celiac.com Sponsor (A8):

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You might find this interesting:

Celiac Disease Prevalence High in Patients with Crohn's Disease

https://www.celiac.com/st_prod.html?p_prodi...-39107055035.eb

Sounds to me like your body had a day without fighting a gluten reaction and it's letting you know it likes gluten-free. Did you also notice there was no dairy in the foods you mentioned? Gluten may not be your only issue.

If you intend to be tested for Celiac, don't go gluten-free until after the test. Going gluten-free before the test can yield a false negative. If I were you, I'd be on the phone to my doc tomorrow.

Congrats on figuring it out!


Karen B.

diagnosed with Celiac Nov. 2003

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yes, a lot of people feel better after a day or two gluten-free.

Re Crohns: From my support group: There is a lady vet that worked with another vet that had celiac. She started baking gluten-free birthday cakes so that he & his celiac daughter could eat the cake.

She did this for several years, then 5 years ago she went into the gluten-free cake business (& wow is she ever good at it). she built a kitchen in her house completely gluten-free, did a bunch of research & would come to our support meetings to bring samples & pass out her business card.

I was picking up some cakes at her vet office & was talking to her & found out that she had crohns I encourged her to get tested thru enterolab.com She got tested & was positive has a DQ2 & a DQ8. She went gluten-free & guess what she does not have crohns anymore. She thanked me a couple of times for talking her into getting tested. I could not believe how much she knew but never got herself tested. She said on day 4 she felt like a whole new person. & of course she said she is studying a lot more now that it is so personal. Not sure what her family is doing at this time. but she is definitely gluten-free & attending all our meetings. Of course she always gives me extra cake to take home!! :) She is also in the process of tearing out the old gluten kitchen & making one huge gluten-free kitchen.

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Is this normal? Do you really feel better like right away or am I grasping at straws?

thanks for any info you can provide.

I have been asking myself this very same question. My blood tests for Celiac Disease were negative even though I ate gluten before the test. But I went 2 days gluten free and felt pretty good. Then I went 4 days gluten free and felt great. Then I went 2 more days, was feeling pretty good and intending to go longer, but was at a party and ate some gluten. Today I woke up achy and have been on the toilet on and off all morning. (Sorry hope that isn't TMI).

Without an official diagnosis, I think I needed to keep testing it to know for sure it wasn't a placebo effect and all in my head. Now I'm committed to really doing it. But suffice it to say, the relief you felt for just one day is very real.


Celiac blood testing negative July 2007

Confirmed diagnosis of wheat allergy by skin test Dec 2007

Gluten-lite since July 2007 (didn't know all the hidden sources of gluten)

Gluten-free since December 2007

Life Long Symptoms

Extreme fatigue--needing 10-12 hours of sleep and still woke up exhusted

Allergic to everything--allergies remained out of control despite shots and strict enviornmental controls in my home.

Severe "sinus" headaches

More Recent Symptoms

IBS symptoms

Severe stabbing stomach pains that started 6 months before diagnosis of wheat allergy.

In my heart I feel it is more than an allergy and that I am gluten intolerant. This is based on my how eerily my childhood maladies match most celiac's histories, and my more recent increase in the severity of my usual symptoms and new digestive symptoms that have already started to subside on the gluten-free diet.

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