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Erwin, Tn


Susan-in-NC

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Susan-in-NC Rookie

Hello to everyone! We are planning to take a whitewater rafting trip on the nolichucky in a couple of weeks. Went a few years ago (2000) before Dx and loved it. This time will take our son and possibly his girlfriend with us. The rafting co. does a lunch, so will plan on supplementing that as it is sandwiches, fruit and cookies, not gluten-free. I've tried to do a gluten-free resturant search in the area and didn't turn out any results. I did see that a smokee bones is in a nearby town, but did not see a gluten-free menu on their site (they were on a gluten-free list for resturants on another link).

Is anyone familiar with this area and able to make recommendations?

Thanks

Susan

  • 2 weeks later...

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Susan-in-NC Rookie

B) Well, I had hoped to get SOME advise for this area. But, as things have turned out -- I survived. I did want to make a note for anyone who happens along and needs info on this area that it is managable. Of course they do have all the major chains for fast food (Wendy's etc.) but the absolute highlight for my trip was the Manager at Logan's Steakhouse. This chain was a favorite of my husband. The resturant in Johnson City was one he visited numerous times on business (telecommunications). Anyway, the manager upon first approach said "I know just what you are talking about and "YOU REALLY CANNOT EAT HERE, there is absolutely nothing I would call safe on the menu." Turns out he as worked at another "chain" resturant that did a gluten-free menu. Well, I expressed how much my family lovedLogans, esp the husband and he said "Let me see what I can do for you" :D , and so he went into the kitchen and instructed and supervised the chef/kitchen staff and prepared a lovely gluten-free dinner just for me.

So, while Logan's has not as a chain acknowledged the need to address gluten-free needs (or any other allergies -- Peanuts everywhere!) at least there is one location within this chain that will provide assistance.

Susan

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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