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Looking Like This Is It


megdog1992ms

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megdog1992ms Newbie

Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark


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gfpaperdoll Rookie

You might find this article informative

Open Original Shared Link

And from another board:

"Dr. Fasano lists M.S. as an autoimmune disease affected by gluten/too much zonulin/leaky gut. Here's a good article: Open Original Shared Link "

I have read many articles on MS & celiac diet, I think it is now being looked at by a lot of people with MS. You might also try googling it to find other discussions.

my personal opinion is that MS is nothing more than a form of celiac disease that could benefit from a gluten free diet & I think also the elimination of a few other foods like dairy & legumes...

But then again I believe that the human body is perfect but that we just feed it a combination of the wrong foods which causes disease (unless there is a physical defect in addition to...) If you read some of the books out there like Dangerous Grains, Dr Peter Green's "Celiac Disease, A Hidden epidemic" you will get introduced to the evolution of the human species and the changes they have made in their diet. & see that when wheat was introduced to the diet we also began to die younger & have more disease...

TrillumHunter Enthusiast

You certainly could have celiac not MS. For years I faced an MS diagnosis when it was really celiac. I too, had the brain spots. I'm gluten-free for about three months now and feeling fantastic. I was very happy to have celiac and not MS. If you've been eating gluten you can have a simple blood test to find out.

Best wishes to you!

confusedks Enthusiast

If you want to find out if you have celiac...make SURE you don't take gluten out of your diet!

Kassandra

Belinda Meeker Apprentice
Greetings,

I am a new guy here. It seems that all the symptoms are stacking up to be celiac disease. I was browsing a forum (don't know which one) the topic of MS was noticed. Am I to understand that it may be possible to mis-diagnose celiac disease as MS? I have the brain spots and other symptoms, the definative test is the spinal fluid test for MS, Can celiac disease "throw a false positive" on the oligaclonal banding in the spinal fluid?

Within the last 2 months a nasty bout of roaming joint pain sent me to the doc, not -RA, with a random conversation a friend said look at Ceilac's Looking back, the GI tract symptoms are there and at the time of the joint disaster I was taking a Cake decorating class and was having 2-3 cakes a week. I could not gain a pound if my life depended upon it.

Any feedback?

Respectfully,

Mark

Hey Mark,

Sorry to hear u too maybe have this awful disease, but I'm sure it better then the MS.

My brother-in-law was DXD about 10+ years ago with MS but now his brother (my hubby) is having symptoms of celiac disease (we have a Celiac Spru son age 17) and I too have celiac disease so myabe bro-in-law too?

Not sure but we r going for gene test in September, maybe a suggestion for u too !

U said u ate 2-3 cakes a week? Maybe that was ur problem all along.....son got brain fogs from goodies for years just now found the culprete 15 years later.

Well best of luck to u finding the source and welcome :)

Belinda

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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