Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help!

Indea88

Recommended Posts

Indea88 Newbie
Indea88
Posted

My 4 year old son has been gluten free for 2 and a half years..Positive DQ2, negative antibodies.He had never had a formed stool from the day he was born, always diarrhea.He has had dramatic improvements since being gluten-free.

My question is now we have Immunolabs antibody testing/Autism panel drawn and the testing comes back negative for wheat and barley, positive for oats!

My husband and I are now completely confused. Is it that he has been off of these grains for so long that he is no longer producing antibodies.?..I would never return him to gluten..his dark circles have disappeared, his gut has healed.

I don't understand these results and his DAN Dr. didn't add any explanation. He also tested reactive to citrus, cheese, and RICE!!! Now what do I feed him? Rice flour has been the alternative,I guess now I have to look for other grains, potatoe flour, tapioca etc.

Has anyone ever heard of a child reacting to rice? Could this be a false positive!! Just when I thought I had my little man's diet down, we are hit with this!!!HELP!!! Thanks for any input...

Andie :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nic Collaborator
Nic
Posted

If he is on a gluten free diet wouldn't that explain the negative for wheat? I believe you need to be eating wheat to produce antibodies against it. There are other people on this forum that are intolerant to other grains as well so they can help you with the rice. I am surprised about the oats because if he is gluten free he wouldn't be eating any to cause the antibodies.

Nikki2003 Contributor
Nikki2003
Posted

My 3 1/2 yr old daughter when she was first diagnosed she had neg for wheat also but still has celiac.

It is definetely possible.

Hope that helps somewhat.

Liz2 Newbie
Liz2
Posted
My 4 year old son has been gluten free for 2 and a half years..Positive DQ2, negative antibodies.He had never had a formed stool from the day he was born, always diarrhea.He has had dramatic improvements since being gluten-free.

My question is now we have Immunolabs antibody testing/Autism panel drawn and the testing comes back negative for wheat and barley, positive for oats!

My husband and I are now completely confused. Is it that he has been off of these grains for so long that he is no longer producing antibodies.?..I would never return him to gluten..his dark circles have disappeared, his gut has healed.

I don't understand these results and his DAN Dr. didn't add any explanation. He also tested reactive to citrus, cheese, and RICE!!! Now what do I feed him? Rice flour has been the alternative,I guess now I have to look for other grains, potatoe flour, tapioca etc.

Has anyone ever heard of a child reacting to rice? Could this be a false positive!! Just when I thought I had my little man's diet down, we are hit with this!!!HELP!!! Thanks for any input...

Andie :huh:

Liz2 Newbie
Liz2
Posted

Hi Andie

My son was diagnosed with Celiac in April 2007, just days after his 4th birthday. Unfortunately, he had been exhibiting strong symptoms since birth (bloated tummy, projectile vomitting, "foamy" poops, and a "pain" cry all the time) but it took me 7 months of pleading with my Dr. to get a referral to a GI specialist. It was obvious to the specialist that my baby was exhibiting classic acid reflux symptoms and he felt there was an allergy problem too. Sure enough, he tested allergic to EVERYTHING food related except for organic oats. And yes, that included a strong reaction to RICE. To make a very long story short, he eventually outgrew all his food allergies (by his 4th birthday) which was when the specialist clued in that there was something else wrong with this kid!

If your child is no longer able to have rice flour, try nut flour. There is a book out called Breaking the Vicious Cycle by Elaine Gottschall and there are some excellent recipes using bean and nut flour.

Hope this helps!

Liz2

Electra375 Newbie
Electra375
Posted

Other grains - teff, sorghum, millet, quinoa all much heathier than rice anyway.

DQ2s can have a separate reaction to the oat protein, presents like gkuten symptoms. DQ2 Celiac children should not consume oats of ant kind. There are pubmed abstracts on these studies.

And yes consumption of the food needs to have been taking place for the antibody to show up, the time from last bite to test varies by person. 54 days gluten-free my son still racted to IgG blood test. The stool test and other blood test would never give us a positive b/c he is IgA deficient.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    2. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    3. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    4. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Thanks for your input.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,069
    • Most Online (within 30 mins)
      7,748
    Cr88
    Newest Member
    Cr88
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.