Please Help!

[Indea88]

My 4 year old son has been gluten free for 2 and a half years..Positive DQ2, negative antibodies.He had never had a formed stool from the day he was born, always diarrhea.He has had dramatic improvements since being gluten-free.

My question is now we have Immunolabs antibody testing/Autism panel drawn and the testing comes back negative for wheat and barley, positive for oats!

My husband and I are now completely confused. Is it that he has been off of these grains for so long that he is no longer producing antibodies.?..I would never return him to gluten..his dark circles have disappeared, his gut has healed.

I don't understand these results and his DAN Dr. didn't add any explanation. He also tested reactive to citrus, cheese, and RICE!!! Now what do I feed him? Rice flour has been the alternative,I guess now I have to look for other grains, potatoe flour, tapioca etc.

Has anyone ever heard of a child reacting to rice? Could this be a false positive!! Just when I thought I had my little man's diet down, we are hit with this!!!HELP!!! Thanks for any input...

Andie

[Nic]

If he is on a gluten free diet wouldn't that explain the negative for wheat? I believe you need to be eating wheat to produce antibodies against it. There are other people on this forum that are intolerant to other grains as well so they can help you with the rice. I am surprised about the oats because if he is gluten free he wouldn't be eating any to cause the antibodies.

[Nikki2003]

My 3 1/2 yr old daughter when she was first diagnosed she had neg for wheat also but still has celiac.

It is definetely possible.

Hope that helps somewhat.

[Liz2]

My 4 year old son has been gluten free for 2 and a half years..Positive DQ2, negative antibodies.He had never had a formed stool from the day he was born, always diarrhea.He has had dramatic improvements since being gluten-free.

My question is now we have Immunolabs antibody testing/Autism panel drawn and the testing comes back negative for wheat and barley, positive for oats!

My husband and I are now completely confused. Is it that he has been off of these grains for so long that he is no longer producing antibodies.?..I would never return him to gluten..his dark circles have disappeared, his gut has healed.

I don't understand these results and his DAN Dr. didn't add any explanation. He also tested reactive to citrus, cheese, and RICE!!! Now what do I feed him? Rice flour has been the alternative,I guess now I have to look for other grains, potatoe flour, tapioca etc.

Has anyone ever heard of a child reacting to rice? Could this be a false positive!! Just when I thought I had my little man's diet down, we are hit with this!!!HELP!!! Thanks for any input...

Andie

[Liz2]

Hi Andie

My son was diagnosed with Celiac in April 2007, just days after his 4th birthday. Unfortunately, he had been exhibiting strong symptoms since birth (bloated tummy, projectile vomitting, "foamy" poops, and a "pain" cry all the time) but it took me 7 months of pleading with my Dr. to get a referral to a GI specialist. It was obvious to the specialist that my baby was exhibiting classic acid reflux symptoms and he felt there was an allergy problem too. Sure enough, he tested allergic to EVERYTHING food related except for organic oats. And yes, that included a strong reaction to RICE. To make a very long story short, he eventually outgrew all his food allergies (by his 4th birthday) which was when the specialist clued in that there was something else wrong with this kid!

If your child is no longer able to have rice flour, try nut flour. There is a book out called Breaking the Vicious Cycle by Elaine Gottschall and there are some excellent recipes using bean and nut flour.

Hope this helps!

Liz2

[Electra375]

Other grains - teff, sorghum, millet, quinoa all much heathier than rice anyway.

DQ2s can have a separate reaction to the oat protein, presents like gkuten symptoms. DQ2 Celiac children should not consume oats of ant kind. There are pubmed abstracts on these studies.

And yes consumption of the food needs to have been taking place for the antibody to show up, the time from last bite to test varies by person. 54 days gluten-free my son still racted to IgG blood test. The stool test and other blood test would never give us a positive b/c he is IgA deficient.