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How Long Was It Until You Noticed A Difference On A Gluten-free Diet?

Luke987

By Luke987
in Coping with Celiac Disease

Recommended Posts

sedunk Apprentice
sedunk
Posted

Greetings,

Have you found any gluten-free Licorice? I have been gluten-free for about 2 1/2! I love Licorice, that is my one weakness. I love the Strawberry and Cherry Flavors. Any thoughts where I may purchase gluten-free Licorice.

I am would be so thankful. Yummy. My birthday is this Friday and I am so pissed about the Birthday Cake, Pasta, and bread. I am Italian, we are typically food driven!

Have a wonderful day. I have been searching for licorice. I will keep you posted if I find some first.

Sara

I started to turn the corner at 3 days gluten-free, and was free of most symptoms by 3 months. The learning curve can be steep with gluten-free food, so I accidentally glutened myself a few times in the first few months. Why the hell is wheat in licorice anyway!?!?!

Be patient, and you will start to see results. You may need to eliminate dairy for a time while your villi heal, also.

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sedunk Apprentice
sedunk
Posted

Greetings,

I have been Gluten Free for about 2 /2 weeks. I felt horrible the first week. I was so tired and had horrible ab pain on my left side. I am not as tired this week, but still don't feel well. My doctor told me that my energy levels could be low for the next 6 weeks. My doctor told me to drink a lot of water.

I want to eat everything in sight. My birthday is Friday and I am really cranky about the Cake ISSUE!

I hope you feel better soon.

Sara

OregonGF Newbie
OregonGF
Posted

I'm writing my first correspondence here, OregonGF happy to meet you all. July 2007 I was diagnosed by EnteroLab with 2 genes indicating likely allergy to gluten and negative diagnosis on celiac in the same test. My new nurse practiotioner suggested gluten-free and I have begun.

My energy improved and my depression seemed to lift-away after avoiding wheat for 2 weeks, but I have also picked up on Vitamin D dosage (8,000 mgs!) So, not really sure what's making the changes. It's a big circle all connected and I realize this is a different journey for us all. We each need to figure out what works for us. ;) Speaking here with you all provides a tremendous sense of support that I cannot find out there, where people can eat wheat.

The one thing I want to share in relation to this topic is, last night I ate DOuble fudge lowfat (ha ha) yogurt :ph34r: with Brownie chunks in it. The ingredients included wheat-somthing or another and today, despite a good night's sleep, I am tired.

Thanks for being here everyone and Happy Day GiA (God is Awesome)

OregonGF

Joni63 Collaborator
Joni63
Posted

Thank you for this thread Luke987!

It's so good to know that my symptoms are similar to other's who started the gluten-free diet. I started Wednesday this week so it's been only 5 days counting today. I did have the headaches for the 2nd and 3rd day, but on the 4th day I had the best day I've had in a long time until I think I accidently ate gluten. I slept terribly last night and took a nap this afternoon, but have been great since I woke up for the rest of today.

Now if I can just sleep through the night once in a while I'd be terrific!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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