Salivary Glands

[Moongirl]

About the same time i was dx with celiac disease...i started feeling this funny 'lump' underneathe my jaw on my right side.

after about 2 years to the ENT dr, and the dx of dry salivary gland, it seems to begetting worse. So i was for a CT scan to rule out a stone.

And I got the all clear, nothing is there.

So my question is, could it be only dehydration? I noticed when i was eating sour candy i had much relief. Also when he was checking for the saliva secretion under my tongue, there wasnt much.

so my next phone call to the dr, i kinda want to have an idea what to ask him what my next steps are...

any advice or comments would be greatly appreicated.

Thanks

[jewi0008]

About the same time i was dx with celiac disease...i started feeling this funny 'lump' underneathe my jaw on my right side.

after about 2 years to the ENT dr, and the dx of dry salivary gland, it seems to begetting worse. So i was for a CT scan to rule out a stone.

And I got the all clear, nothing is there.

So my question is, could it be only dehydration? I noticed when i was eating sour candy i had much relief. Also when he was checking for the saliva secretion under my tongue, there wasnt much.

so my next phone call to the dr, i kinda want to have an idea what to ask him what my next steps are...

any advice or comments would be greatly appreicated.

Thanks

I have a question, then, for you. Does your mouth/tongue annoy you? That is my BIGGEST problem! I always think I feel little lumps underneath my jaw.

[Moongirl]

I have a question, then, for you. Does your mouth/tongue annoy you? That is my BIGGEST problem! I always think I feel little lumps underneath my jaw.

Nope Ive never had a problem with my mouth or tongue. its just my salivary gland on one side...i cant seem to figure out whats causing the lumpiness....they keep saying it dehydration, but i dont think thats the only thing.

[Katydid]

I couldn't believe it when I saw your post about salivary gland issues. My husband, who has been celiac for 20 years gets a 'lock jaw' like syndrome. He goes to the doctor and they call it a salivary gland inflamation. They give him antibiotics and it goes away. I never dreamed it might be celiac related.

[CDFAMILY]

Well, this is definitely my area. I had my left gland swell so bad I was sent to the ER. I was in for 3 days to get the swelling down on drips, steroids and antibiotics. They were afraid the swelling would close my airway. That was last April 2006. I would periodically get swollen glands since then. By January of this year this happened again and called doctor and got a prescription but nothing helped and I ended up in the ER begging for morphine. My gland was huge, my tongue was swollen and I was running a 102 fever. By evening, out popped a 4mm stone.

My Xray in April of 2006 showed nothing but of course now I know I had a stone just waiting to come out. I have had my glands swelling for years and always thought it had to do with my body trying to fight an infection, but now I know it was really a stone.

They tell me to suck on sour candy which helps if it is barely swelling, but once the stone starts moving, and the gland becomes inflamed, you really can't suck on anything let alone eat.

[Gemini]

I posted on another thread about this but you need to be tested for Sjogren's Syndrome. Sjogren's is another autoimmune disease that Celiac's often get also. Causes dry eyes and dry mouth AND causes

swelling of the salivary glands as a result of the inflammation. I never had the swollen glands but have the dry eyes and mouth. I believe stones are also a problem for some.

Tests are blood work and are called SSA and SSB. Doctor's rarely get this right and dehydration is not the cause. There are products to use that can make the symptoms easier to deal with but, of course, there is no cure. I am now on Restasis eye drops and they have made a HUGE difference in my eyes.

Sorry to bring more bad news but I felt I should tell you all this so you can be tested and get some relief. Otherwise, you'll just be plied with antibiotics and other meds that won't do anything long term.

Good luck to all!