Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reactions

JessieFree

Recommended Posts

JessieFree Apprentice
JessieFree
Posted

I had a positive biopsy and negative allergy/blood tests. I'm supposed to be trying the gluten-free diet for 3 months to see if it's true. I don't think it is because I know there were times when ate gluten and never had a reaction and there are times i have reactions when I know I've had no gluten. I've been on and off the diet (because my doctors have different opinions) and couldn't tell much of a difference either way. Why would I still have symptoms with gluten free foods?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I had a positive biopsy and negative allergy/blood tests. I'm supposed to be trying the gluten-free diet for 3 months to see if it's true. I don't think it is because I know there were times when ate gluten and never had a reaction and there are times i have reactions when I know I've had no gluten. I've been on and off the diet (because my doctors have different opinions) and couldn't tell much of a difference either way. Why would I still have symptoms with gluten free foods?

A gluten reaction can be delayed, and some here can react up to three days later. That might be something to think about. There are also some celiacs that are non-symptomatic. They have no symptoms, but the damage does occure.

Celiac is not always about what you consume in your meals. Lipstick, lotions, shampoos, meds and scratched pots and pans, wooded spoons used prior to being gluten free can also cause problems.

I do not know how long you have been gluten free, but for many here, it has taken months to feel relief from a gluten free diet. There are way too many traps to fall into when you are first diagnosed.

It is really unrealistic for a very newly diagnoses celiac to go 100% - there is just way too much to learn. But it can be done with study and diligence.

Hope that can answer some of your questions. And welcome!!

Ed-G Newbie
Ed-G
Posted

For me, it depends. Sometimes I get a gluten reaction right away, and sometimes I don't seem to get any at all.

Ed in MD

Mickide Apprentice
Mickide
Posted

I have been walking through life with no idea I was Celiac or real symptoms from gluten. I just thought it was me, how my body was, never really thought anything was wrong (except losing 30lbs). It is actually my biggest fear about my recovery, that I won't know if I accidentally ingest gluten.

jacqui Apprentice
jacqui
Posted

After I was diagnosed my sis ter kept denying she had celiac b/c she did not have symptoms or so she thought. 10 mos. later she was + for celiac disease, anemia, osteopenia, vit. deficiences... Since gluten-free she is feeling much better and relized she did have symptoms after all but she just thought it was normal ie bloating to looking pregnant after eating-she just thought she ate too much...

She also became sick going gluten-free at first. Every "typical" symptom of celiac disease she had on a gluten-free diet!! :blink:

I had a positive biopsy and negative allergy/blood tests. I'm supposed to be trying the gluten-free diet for 3 months to see if it's true. I don't think it is because I know there were times when ate gluten and never had a reaction and there are times i have reactions when I know I've had no gluten. I've been on and off the diet (because my doctors have different opinions) and couldn't tell much of a difference either way. Why would I still have symptoms with gluten free foods?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      23

      Shingles - Could It Be Related to Gluten/ Celiac

      @Ginger38, Are you taking a B Complex vitamin? Vitamin D? Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.
    2. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      33

      Severe severe mouth pain

      There's simple dietary changes that can be done to improve Barrett's esophagus. There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help. A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps...
    3. Bogger
      - Bogger replied to Bogger's topic in Related Issues & Disorders
      2

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my d...
    4. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      33

      Severe severe mouth pain

      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary.
    5. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      33

      Severe severe mouth pain

      Thank you!!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,083
    • Most Online (within 30 mins)
      7,748
    AASpahic
    Newest Member
    AASpahic
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      @Ginger38,  Are you taking a B Complex vitamin?  Vitamin D?  Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.  
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      There's simple dietary changes that can be done to improve Barrett's esophagus.  There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help.  A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps.  Green leafy vegetables are high in Folate and Riboflavin.       Dietary sugar and Barrett’s esophagus https://pmc.ncbi.nlm.nih.gov/articles/PMC5725502/#:~:text=The major finding of the,and sugar consumption [13].     Dietary intake of vegetables, folate, and antioxidants and the risk of Barrett's esophagus https://pubmed.ncbi.nlm.nih.gov/23420329/    Intakes of dietary folate and other B vitamins are associated with risks of esophageal adenocarcinoma, Barrett's esophagus, and reflux esophagitis https://pubmed.ncbi.nlm.nih.gov/24132576/    Associations between dietary folate intake and risks of esophageal, gastric and pancreatic cancers: an overall and dose-response meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC5689728/     Dietary vitamin B intake and the risk of esophageal cancer: a meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6225909/#:~:text=A statistically significant%2C inverse association,an increased risk of EC.    Intake of Dietary One-Carbon Metabolism-Related B Vitamins and the Risk of Esophageal Cancer: A Dose-Response Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6073467/    Dietary riboflavin deficiency induces ariboflavinosis and esophageal epithelial atrophy in association with modification of gut microbiota in rats https://pubmed.ncbi.nlm.nih.gov/32458157/    Association of Vitamin D and Parathyroid Hormone With Barrett's Esophagus (parathyroid needs Pyridoxine B6) https://pubmed.ncbi.nlm.nih.gov/30180151/   "let food be your medicine, let medicine be your food. "
    • Bogger
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By Bogger · Posted

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my doctor recommends it first over Reclast. Reclast is introduced into a vein thus bypassing the stomach which avoids all those stomach issues. But, once it’s in me, it’s there for a year or so. Any complications can’t be undone. With Reclast, I’m concerned about not being able to treat dental issues, several weeks of bone pain and the chance, although rare, of kidney damage. Plus all those other dozens of common side effects. It’s a very effective drug but looks pretty complicated to deal with. Hopefully I’m not just being a big chicken. In 2018 I fell and broke my ankle in two places. It took three screws to put it back together which is normal for that surgery. There was no mention of any difficulty or signs of bone loss. Thanks to my dog, I fell about a month ago onto a concrete floor with thin carpet. I landed on my left hip, then my spine, one vertebrae at a time, then clunked my head on the door frame. Twisted my wrist too. It was all in slow motion waiting to feel a crack that didn’t happen. Went to the ER tho. Amazingly, I didn’t even see any bruises. Thanks again for that link. I need to read through it some more. My doctor’s appt is next week when I’ll make the big decision.   
    • trents
      Severe severe mouth pain

      By trents · Posted

      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary. 
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      Thank you!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.