Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors At Dartmouth (dhmc)

sedunk

By sedunk
in Doctors

Recommended Posts

sedunk Apprentice
sedunk
Posted

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


deesmith Apprentice
deesmith
Posted

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara

[/quote

-

uhmmm... good luck with that! I don't mean to sound rude, but I am so upset with dartmouth. I don't want to concern you because everyone has their own stories and experiences with doctors. it's all a matter of personal opinion in choosing a facility and the right doctor. However, here's a short version of my story:

my mom died at dartmouth. She went to the hospital for an emergency surgery for blockage in her intestines. This was at another hospital and all afer years of trying to find out what was wrong with her besides heart disease. She was so anemic, they tested her over and over for leukemia. She had axatia, seizures, thyroid disease, etc. Anyway, after the surgery she didn't get better. She was sent to Dartmouth. She was in and out of there for a year (mostly in) and slowly starved to death. She kept telling them that whatever they were feeding her was making her sick. She has 7 kids and we were all so ignorant about celiac disease at the time. I asked the doctors why it had come to her dying like that... he said "her intestines just never healed after the surgery because she was so deteriorated". All the time she was having these symptoms, I was too. After her death they got really bad. So I went to a pcp at dartmouth. When she ordered an endoscopy for the unexplained amemia, I read up on why they would do one. I came across celiac disease and IT ALL MADE SENSE. But she NEVER told me about celiac disease and NEVER told me to continue to eat lots and lots of gluten for the test. I read about celiac disease the night before the exam. I had fasted for about 3 weeks prior to that because I had been so sick from food. Anyway the biopsy came out negative. I don't know how many biopsies they even took or anything.

So, long story, I went to Dr. Green at Columbia University. He said there are reasons why it could be negative and that doesn't mean I don't have it. (I do and 2 siblings and a niece have since been diagnosed too)

My pcp at Dartmouth REFUSED to work with Dr. Green and said "the biopsy is the gold stanard, yours was negative, so there is no way you have celiac disease"!!!! I begged her to do the blood work and I told her I'd keep eating gluten, at that point, and she refused.

I don't go there anymore and am currently switching pcp again.

I know what an admirable facility DHMC is, but I truly, truly believe that they DO NOT know what they are doing when it comes to celiac disease.

Just my opinion. Sorry to rant so much.

I honestly hope you can find a great pcp that understands you and listens to you. This is so hard, isn't it?

Dee

deesmith Apprentice
deesmith
Posted

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

sedunk Apprentice
sedunk
Posted
  • Author

Greetings,

I just saw your new post. I would love any information you are willing to provide. I would be very emotional as well. You have every reason to be angry and upset. I completely understand.

I haven't been all that happy with anyone I have seen at any of the hospitals in the upper valley.

I had one doctor that thought it was all in my head. I have a new doctor that thinks I am depressed and wants to give me depression medication and sleeping pills. I asked if that was so I could sleep through my itching!

I have been dealing with this for a long time and really had major problems for the past 4 years. My doctor did a blood test after I had made myself gluten-free for three weeks. You know what happened next, a negative report!

I have had it.

I did find a nutritionist that I really like her name is Gita Patel, she has her own office in Etna. She is really not associated with any of the hospitals.

She told me about a blood test that will actually test you for all different kinds of foods. If you want to I would be more than happy to e-mail you the name of the test. I have all the information in my car.

My e-mail is sedunk@yahoo.com

I really appreciate all your information.

I am really thinking about going to another holistic doctor as well.

Sara

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.