Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors At Dartmouth (dhmc)


sedunk

Recommended Posts

sedunk Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deesmith Apprentice

Greetings,

Does anyone have a great PCP at Dartmouth. I am in major need of a new doctor. My current doctor seems to think I am nuts. She told me I needed sleeping pills and depression medication. I have food allergies and eczema. Great I can sleep through the itching!

Sara

[/quote

-

uhmmm... good luck with that! I don't mean to sound rude, but I am so upset with dartmouth. I don't want to concern you because everyone has their own stories and experiences with doctors. it's all a matter of personal opinion in choosing a facility and the right doctor. However, here's a short version of my story:

my mom died at dartmouth. She went to the hospital for an emergency surgery for blockage in her intestines. This was at another hospital and all afer years of trying to find out what was wrong with her besides heart disease. She was so anemic, they tested her over and over for leukemia. She had axatia, seizures, thyroid disease, etc. Anyway, after the surgery she didn't get better. She was sent to Dartmouth. She was in and out of there for a year (mostly in) and slowly starved to death. She kept telling them that whatever they were feeding her was making her sick. She has 7 kids and we were all so ignorant about celiac disease at the time. I asked the doctors why it had come to her dying like that... he said "her intestines just never healed after the surgery because she was so deteriorated". All the time she was having these symptoms, I was too. After her death they got really bad. So I went to a pcp at dartmouth. When she ordered an endoscopy for the unexplained amemia, I read up on why they would do one. I came across celiac disease and IT ALL MADE SENSE. But she NEVER told me about celiac disease and NEVER told me to continue to eat lots and lots of gluten for the test. I read about celiac disease the night before the exam. I had fasted for about 3 weeks prior to that because I had been so sick from food. Anyway the biopsy came out negative. I don't know how many biopsies they even took or anything.

So, long story, I went to Dr. Green at Columbia University. He said there are reasons why it could be negative and that doesn't mean I don't have it. (I do and 2 siblings and a niece have since been diagnosed too)

My pcp at Dartmouth REFUSED to work with Dr. Green and said "the biopsy is the gold stanard, yours was negative, so there is no way you have celiac disease"!!!! I begged her to do the blood work and I told her I'd keep eating gluten, at that point, and she refused.

I don't go there anymore and am currently switching pcp again.

I know what an admirable facility DHMC is, but I truly, truly believe that they DO NOT know what they are doing when it comes to celiac disease.

Just my opinion. Sorry to rant so much.

I honestly hope you can find a great pcp that understands you and listens to you. This is so hard, isn't it?

Dee

deesmith Apprentice

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

sedunk Apprentice

Greetings,

I just saw your new post. I would love any information you are willing to provide. I would be very emotional as well. You have every reason to be angry and upset. I completely understand.

I haven't been all that happy with anyone I have seen at any of the hospitals in the upper valley.

I had one doctor that thought it was all in my head. I have a new doctor that thinks I am depressed and wants to give me depression medication and sleeping pills. I asked if that was so I could sleep through my itching!

I have been dealing with this for a long time and really had major problems for the past 4 years. My doctor did a blood test after I had made myself gluten-free for three weeks. You know what happened next, a negative report!

I have had it.

I did find a nutritionist that I really like her name is Gita Patel, she has her own office in Etna. She is really not associated with any of the hospitals.

She told me about a blood test that will actually test you for all different kinds of foods. If you want to I would be more than happy to e-mail you the name of the test. I have all the information in my car.

My e-mail is sedunk@yahoo.com

I really appreciate all your information.

I am really thinking about going to another holistic doctor as well.

Sara

Hey Sara:

sorry about my last post, but as you can imagine, it's an emotional issue for me.

I should have just politely said, "No, I don't know of a good pcp at DHMC".

But, if you want, I can tell you where my neice went to get tested. He's a pcp about 40 min south of dartmouth. One of my sisters says he's a granola, but another sister and her kids have been going to him for years. I have never been there and have never met him, so I don't really know. But my neice went and told him about me and all her symptoms (for years) and he immediately did the blood work and genetic testing. So, just let me know.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,149
    • Most Online (within 30 mins)
      7,748

    Indian Room
    Newest Member
    Indian Room
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • N00dnutt
      Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense of Villi will typically result in watery bowl movements, other telltale signs being, lethargy, feeling cold, always hungry (valuable nutrients are being bypassed). I was diagnosed 12 years ago. One other thing associated with an AutoImmune Disease, they generally have a companion, in my case I have Hypothyroidism, other may have Hyperthyroidism (Hashimoto's). Others may get Eczema, or some other skin disorder, usually due to not getting the proper nutrition your body needs.   HTH Mark.  
    • jeriM
      Thank you Knitty Kitty,   I have all the information for the nutritionist sitting in front of me, but I've procrastinated.   Between you and Scott - I'll contact him tomorrow and get started on a better me.   Thank you both for all the support and information.    
    • knitty kitty
      Hi, @jeriM, I can attest to Celiac and eye problems being connected!  There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease.  Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell.  Have your doctor check for Sjogren's.  Correct low Vitamin D, which regulates the immune system.  Talk to your nutritionist about including in your diet plenty of Omega Three's. Omega Three's help keep our eyes moist and lubricated.  You know how oil floats on water, same thing with our eyes!  Fun fact:  Our eyes are derived from the same sort of tissues as our digestive tract in a developing fetus. Oh, check your thyroid function, too.  Hashimoto's thyroiditis frequently occurs with Sjogren's. Autoimmune diseases tend to cluster in celiac disease.  I also have Diabetes type two.   Discuss with your nutritionist the benefits of a low histamine diet.  A low histamine diet can help reduce inflammation and gets those inflammation markers down.  I like the Autoimmune Protocol Diet, a Paleo diet that promotes intestinal health. Best wishes!  Keep us posted on your progress!
    • jeriM
      Ah, Scott,    Ha ha!  Thats almost a reasonable assumption given the prices during the shortage.  However, our eggs?  We always gave them away to friends and seniors we know, so no mansion here.  Now we have to buy eggs like everyone else.   The house we found, we loved so much that it made it worth it for us to give up the chickens.  A hard decision.   
    • Scott Adams
      Claritin is an allergy medication which can help with allergy symptoms, but may not be helpful with gluten exposure.
×
×
  • Create New...