Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inflammation In The Stomach

hillary-h

Recommended Posts

hillary-h Rookie
hillary-h
Posted

Hi

I took my daughter for her biopsy on the 29th of january. While doing her biopsy they noticed some inflammation in her stomach and her intestines were twisted. Does anyone know if this is related to celiac disease. The doctor did mention that they thought celiac disease effected the intestines but you can also see signs of the disease in the stomach.

Hillary

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hillary-h Rookie
hillary-h
Posted
  • Author

Hi

Now I know why no one has replied to my message I did some research and found out that Ronni has Intestinal Malrotation. I am so worried I dont know what to do the doctor is suppose to contact me today regarding her biopsy I already know she will need surgery to repair her intestines but I still dont understand why she has inflammation in her stomach. Does anyone understand why the doctor would tell me not to start the gluten-free diet yet Im so confused. Im a single mother and work from 8:00 to 5:00 her doctor is in California we live in Las Vegas so its hard for me to get in touch with her doctor to ask questions. We moved to las Vegas a year ago I didnt want to change her insurance because she was sick all the time and I wanted to wait until she was healthy. But this has really been hard for us. Please if anyone has any information on inflammation in the stomach I would really appriciate it.

Thank you,

Hillary

Guest jhmom
Guest jhmom
Posted

Hillary, I am sorry you and your daughter are going through this. :( I do not know about inflammation of the stomach but I do know when I had my colonoscopy the doctor said my colon was twisted too however he did not seem to be worried about it all. <_<

Maybe the reason the doc don't want to start on the gluten-free diet yet is because he wants to do further testing on your daughter?!?! Has the doc drawn blood to check her for Celiac or did he/she skip to the endoscopy?

I know at this point you want some answers and I don't blame you. Have you considered testing through Enterolab? It is noninvasive and very simple. You get the results in a matter of weeks and they are accurate!

I hope your little one feels better soon :) !

hillary-h Rookie
hillary-h
Posted
  • Author

Hi Stacie,

Thank you for your reply, I just got word this morning that her biopsy confirmed celiac disease and the biopsy on her stomach was fine. Ronni goes in feb. 13 for x-rays on her intestines to see if she will need surgery. The doctor also told me to start her diet. I will be going shopping tonight.

Hillary

Guest jhmom
Guest jhmom
Posted

That is good, at least now you know what makes her sick and you can avoid it by putting her on a gluten-free diet! :)

I am sure you will begin to see an improvement in her within a couple of weeks, I could tell a difference within days.

seeking-wholeness Explorer
seeking-wholeness
Posted

Hillary,

I'm so glad to hear that your daughter's biopsy was conclusive! celiac disease isn't the easiest diagnosis to adjust to, but it isn't the hardest, either, and on the gluten-free diet I am sure she will grow up happy and healthy. Good luck in your first gluten-free shopping venture tonight!

  • 2 weeks later...
hillary-h Rookie
hillary-h
Posted
  • Author

Hi

Ronni's x-rays came back fine she doesn't need surgery. But I'm having a problem with this diet ronni is picky to begin with and she doesn't like the gluten-free food at least what we have gotten so far. We drove back from California on sunday after her doctors appointment, when we stopoped at the gas station ronnni wanted something sweet (I did have gluten-free Crackers and Cookies for her but she doesn't like them) well they didn't have a Hershey's bar so I let her get a Jolly Rancher she has been sick for two days. I feel she's not getting enough food. I sent her to school with turkey, ham, grapes,orange and some gluten-free chips I know half of it will come back. I feel so alone with this diet and I cry for her thinking this is her life.

Hillary

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Hi Hillary, she doesn't need surgery, that is wonderful news!!! I know how you feel I too have a picky daughter ;) . My daughter is 8 and in the 3rd grade. I usually try to send her to school with Rice, pasta (corn), chicken, hamburgers along with chips and fruit. Her teacher has been nice enough to warm her lunch for her after I wrote a letter explaining celiac disease and asked that she do this. They added the letter and her diagnosis to her file and meet her needs. Maybe this would be an option for you? And if your daughter is anything like mine she comes home and chows down, am I right???? :)

I hope she begins to feel better and don't get discouraged, it will get better!!! Hang in there :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.