Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bleeding?

melmak5

By melmak5
in Coping with Celiac Disease

Recommended Posts

melmak5 Contributor
melmak5
Posted

I have called my GI, but I am wondering if anyone else gets rectal bleeding when glutened...

Friday I went out and had a slice of flourless chocolate cake and a few drinks (the first time in almost 4 months I have had a drink - and I called and checked 2x to ensure the cake was gluten free).

I nearly passed out after acupuncture Saturday afternoon.

A few hours later, regurgitated water into my mouth a couple of times.

Later, broke out in itchy red bumps on my abdomen and wrists.

Got really stuffy (thought I was getting a cold).

I finished my round of antibiotics for bacterial overgrowth Saturday night.

I spent most of yesterday in bed, exhausted, stuffy, dizzy, sweating excessively (tylenol did nothing, so I don't think it was a fever).

Woke up this morning with abdomen pain/pressure and some bright red blood.

I have not ingested any gluten since being diagnosed June 21. Does this sound like I got hit with some gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pedro Explorer
pedro
Posted

Hi

Three weeks ago I bought a cake I saw on the box Dairy free, but I did not realized that it was not gluten free, I thought it was. The same day in the afternoon my mouth broke into canker sores, pains in the abdomen, and in the evening I was bleeding from the rectum. It was so confusing because I thought I did not ingest any gluten, but I had all the symptoms. Later in the week we were going to make the seconf cake and thats when my wife told me did you looked at the ingridients. It had wheat and barley as the top ingridients. It was three weeks ago, and I am still bleeding from my rectum. IT takes a while for your system to recover. The first week was very bright red.

Take care this is one step at a time.

Best regards to you.

melmak5 Contributor
melmak5
Posted
  • Author

Thanks Pedro.

Doc just called and said "things change day to day" and go to the ER if the pain/bleeding get worse.

That my colon looked fine and she could find no reason for the bleeding and that some days are more "painful and bloated" than others. Then said "she had to go" when I asked more questions. BLARGH!

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks Pedro.

Doc just called and said "things change day to day" and go to the ER if the pain/bleeding get worse.

That my colon looked fine and she could find no reason for the bleeding and that some days are more "painful and bloated" than others. Then said "she had to go" when I asked more questions. BLARGH!

Your doc sounds like a real winner. I might just start looking for another one, she should have let you finish your query.

That said, what you are experiencing is not unusual and it does sound like gluten. They could have floured the pan, flour wouldn't be an ingredient technically then or you should look at what you drank. While many tolerate gluten grains that are distilled many of us do not. Also many bar mixers are not gluten-free but not knowing what the drinks were make it hard to say if that is what got you.

If the bleeding becomes apparent when you are not moving your bowels, in other words if it is seeping out, or if you become cold and sweaty, or your lips turn a purplish blue do not hesitate to get yourself to the ER.

melmak5 Contributor
melmak5
Posted
  • Author

Ravenwoodglass - thanks!

I do have some bleeding not associated with a BM, but it happened before, months ago. There is no pain, I do not have a temperature and the doctor's assistant is suppose to be calling me back with the results of my colonoscopy.

She has been really helpful and attentive up until now, so I am hoping she will get her head out of her ass and help me figure out what's wrong with mine!

melmak5 Contributor
melmak5
Posted
  • Author

I asked, and they said the pans were used exclusively for the flourless cake... but I didn't even think about the drink mixes. Thanks.

I spent most of today trying to get the results of my colon biopsies... which the doctor said she mailed to me, but was "in the middle of something and couldn't look them up." And of course her assistant had my chart but wasn't authorized to read the results to me over the phone.

I cannot wait for this chapter be done!

melmak5 Contributor
melmak5
Posted
  • Author

6.5 hours in the ER later...

They have no idea why I am so much pain, or bleeding... but I have "perfect urine."

They sent me on my way with a 3rd muscle relaxant.

I think the bacteria are back, the resident things it was some gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.