Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bleeding?

melmak5

By melmak5
in Coping with Celiac Disease

Recommended Posts

melmak5 Contributor
melmak5
Posted

I have called my GI, but I am wondering if anyone else gets rectal bleeding when glutened...

Friday I went out and had a slice of flourless chocolate cake and a few drinks (the first time in almost 4 months I have had a drink - and I called and checked 2x to ensure the cake was gluten free).

I nearly passed out after acupuncture Saturday afternoon.

A few hours later, regurgitated water into my mouth a couple of times.

Later, broke out in itchy red bumps on my abdomen and wrists.

Got really stuffy (thought I was getting a cold).

I finished my round of antibiotics for bacterial overgrowth Saturday night.

I spent most of yesterday in bed, exhausted, stuffy, dizzy, sweating excessively (tylenol did nothing, so I don't think it was a fever).

Woke up this morning with abdomen pain/pressure and some bright red blood.

I have not ingested any gluten since being diagnosed June 21. Does this sound like I got hit with some gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pedro Explorer
pedro
Posted

Hi

Three weeks ago I bought a cake I saw on the box Dairy free, but I did not realized that it was not gluten free, I thought it was. The same day in the afternoon my mouth broke into canker sores, pains in the abdomen, and in the evening I was bleeding from the rectum. It was so confusing because I thought I did not ingest any gluten, but I had all the symptoms. Later in the week we were going to make the seconf cake and thats when my wife told me did you looked at the ingridients. It had wheat and barley as the top ingridients. It was three weeks ago, and I am still bleeding from my rectum. IT takes a while for your system to recover. The first week was very bright red.

Take care this is one step at a time.

Best regards to you.

melmak5 Contributor
melmak5
Posted
  • Author

Thanks Pedro.

Doc just called and said "things change day to day" and go to the ER if the pain/bleeding get worse.

That my colon looked fine and she could find no reason for the bleeding and that some days are more "painful and bloated" than others. Then said "she had to go" when I asked more questions. BLARGH!

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks Pedro.

Doc just called and said "things change day to day" and go to the ER if the pain/bleeding get worse.

That my colon looked fine and she could find no reason for the bleeding and that some days are more "painful and bloated" than others. Then said "she had to go" when I asked more questions. BLARGH!

Your doc sounds like a real winner. I might just start looking for another one, she should have let you finish your query.

That said, what you are experiencing is not unusual and it does sound like gluten. They could have floured the pan, flour wouldn't be an ingredient technically then or you should look at what you drank. While many tolerate gluten grains that are distilled many of us do not. Also many bar mixers are not gluten-free but not knowing what the drinks were make it hard to say if that is what got you.

If the bleeding becomes apparent when you are not moving your bowels, in other words if it is seeping out, or if you become cold and sweaty, or your lips turn a purplish blue do not hesitate to get yourself to the ER.

melmak5 Contributor
melmak5
Posted
  • Author

Ravenwoodglass - thanks!

I do have some bleeding not associated with a BM, but it happened before, months ago. There is no pain, I do not have a temperature and the doctor's assistant is suppose to be calling me back with the results of my colonoscopy.

She has been really helpful and attentive up until now, so I am hoping she will get her head out of her ass and help me figure out what's wrong with mine!

melmak5 Contributor
melmak5
Posted
  • Author

I asked, and they said the pans were used exclusively for the flourless cake... but I didn't even think about the drink mixes. Thanks.

I spent most of today trying to get the results of my colon biopsies... which the doctor said she mailed to me, but was "in the middle of something and couldn't look them up." And of course her assistant had my chart but wasn't authorized to read the results to me over the phone.

I cannot wait for this chapter be done!

melmak5 Contributor
melmak5
Posted
  • Author

6.5 hours in the ER later...

They have no idea why I am so much pain, or bleeding... but I have "perfect urine."

They sent me on my way with a 3rd muscle relaxant.

I think the bacteria are back, the resident things it was some gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.