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Peripheral Neuropathy....

EBsMom

By EBsMom
in Related Issues & Disorders

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EBsMom Apprentice
EBsMom
Posted

I've been having numbness in some odd places - my right mid-forearm down through the hand, my left hand, my left shin and ankle, and the left side of my back. It's always there, though usually worse in the evening, better in the morning. I've had a little numbness and tingling in my hands for a year or so, but it's never been very bad, so I ignored it. Now that I'm gluten-free/cf, it seems to be worse - ? I have a Dr's appointment scheduled for the week after next, and I'll be sure to tell him about it. Does this sound like peripheral neuropathy? Are there any specific blood tests (nutritional panel, ect.) that I should request my Dr. to run? Are there any supplements I might look at taking (I'm taking a gluten-free multivite...plannning to start probiotics this week.) Any thoughts are welcome!

Rho

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dadoffiveboys Rookie
dadoffiveboys
Posted
I've been having numbness in some odd places - my right mid-forearm down through the hand, my left hand, my left shin and ankle, and the left side of my back. It's always there, though usually worse in the evening, better in the morning. I've had a little numbness and tingling in my hands for a year or so, but it's never been very bad, so I ignored it. Now that I'm gluten-free/cf, it seems to be worse - ? I have a Dr's appointment scheduled for the week after next, and I'll be sure to tell him about it. Does this sound like peripheral neuropathy? Are there any specific blood tests (nutritional panel, ect.) that I should request my Dr. to run? Are there any supplements I might look at taking (I'm taking a gluten-free multivite...plannning to start probiotics this week.) Any thoughts are welcome!

Rho

I would recommend checking for Folic Acid deficiency. My father had a bad case of peripheral neuropathy (diagnosed by a neurologist) and a deficiency in folic acid. This affects the amino acids that make up the nerve cells or something like that. It takes MONTHS to recover the damage as nerve cells heal very slowly. Also I noticed if oyu go gluten-free/CF and make a mistake.. then you get it MUCH WORSE (it seems) although I'm not really sure it is.. you will probably have to stick with the diet for at least 6 months to really see improvements :(.. I wish it would go faster but my experience is no. My dad has been free 6 months now and he no longer has what you would call neuropathy - he also had sleep problems with it which are better as well.

DrMom Apprentice
DrMom
Posted

Please explain to your physician what has been happening. He will probably do quite a few blood tests, hopefully including vit B levels, especially B6 and B12. Do not change your medications meanwhile. Good luck

DrMom

GeoffCJ Enthusiast
GeoffCJ
Posted

Neuropathy was one of my big symptoms before diagnosis. Since going gluten-free, it has seemed at times to get better, then worse than I remembered, then better, then worse.... Frustrating. I've been taking B12, but perhaps I should look at Folic Acid too.

Geoff

lorka150 Collaborator
lorka150
Posted

I was diagnosed with Peripheral Neuropathy due to celiac disease from my neurologist. The longer you are gluten free, the better you will feel.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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    • Ello
      Small Bowel Resection 12 inches

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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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