Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starving Hungry Toddler


gfgypsyqueen

Recommended Posts

gfgypsyqueen Enthusiast

Hi,

I have a 2yr old that has been on a gluten free challenge for about 3 weeks. I can see a difference in her. So I think she probably has this celiac disease. My question is she ranges from barely hungry to bottomless starvation. Some days she will eat 3 pancakes for breakfast. The same day she eats all her lunch and then eats a huge dinner portion. Other days, she doesn't eat all that much-more moderate sizes for a 2 yr old. The problem is she is tiny, doesn't gain weight (hoping this will change gluten-free), and complains her tummy hurts. I try to feed her snacks and small portions, but when she is crying about being hungry its hard to deny her food. The thought has always been, if she is hungry let her eat. The idea was hoping to fill her up and add some calories. She never skips a meal and rarely rufeses any form of food. Is this normal? Do other gluten-free toddlers behave the same way about food? Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

If she has Celiac, then most likely she's not fully digesting any of her food because of damage to her small intestines. She's probably hungry most of the time, but the pains in her stomach may make her stop eating so much, then when the pain is less, she eats according to her hunger.

After she goes gluten-free, you'll most likely find that her eating habits level off to more normal most, if not all of the time. She should start putting on weight soon after she begins to heal.

dandelionmom Enthusiast

My 3 year old who was recently diagnosed acts similarly. When she's hungry, she's really hungry RIGHT NOW. And sometimes she'll eat a huge meal but other times she'll says she's full after a few bites. I'm assuming that any kind of food/tummy issues are related to Celiac and healing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,653
    • Most Online (within 30 mins)
      7,748

    Janet51
    Newest Member
    Janet51
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.