Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insurance Question


miles2go

Recommended Posts

miles2go Contributor

Hi all,

Does anyone have suggestions for me for a med that I have that costs an ungodly amount of money to my insurance company every year ~$100,000/year, last time I checked? I have a $1,000,000 lifetime, so will probably be running into my limit in less than 8 years. Its patent is running out soon, but I'm wondering if I'll just be out of luck, come then-time.

Any help appreciated,

Margaret


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfgypsyqueen Enthusiast

You should be able to call the state Insurance department and ask them questions. Not sure if you want to ask annonymously. Your insurance carrier should also be able to tell you what happens when you reach your limit. Do they increase your rates? Cancel your policy? What are your options once you are unable to purchase this medication? Can you Dr give you any other med? Possibly the Drug supplier can "help" if you meet financial requirements.

Just some ideas.

ravenwoodglass Mentor

You need to contact the drug company, many have programs that can supply meds free or at lower cost. If the patent is about to run out on this drug you may also find it becomes much less expensive when they start marketing generic versions, however you need to check carefully if you do switch to generics as they can have different binders from the name brands.

miles2go Contributor

Thanks much for the great suggestions, gfgypsyqueen and ravenwoodglass. I'm in touch with the drug company on a monthly basis so, that's no problem and I appreciate the reminder regarding the generics and I'll call my HR peeps about the insurance limits, too.

On a side note, mini-trip report, I was at the American Folk Festival in Bangor last night wearing my green and while in the craft-vendors' tents came across what my friend knew as gaspeite, which I'd never heard of before. It's an apple-green, relatively rare mineral (I was with some true jewelry-heads) and imho is Gorgeous. Way to wear green all the time! Now I want some. :D Oh, also, smoked salmon on a stick and pakoras for food. The smoked salmon people couldn't attest to their Cajun spices being gluten-free; I thanked them for their honesty and bought the plain smoked salmon, soooooo good and the Indian folks were just as accomodating, but it cracks me up every time when I tell folks that I can't eat wheat and 97% of the time, they think I'm saying "weed" or "beef".

Margaret

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,538
    • Most Online (within 30 mins)
      7,748

    Scott Ganzert
    Newest Member
    Scott Ganzert
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.