Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Help Please


wowzer

Recommended Posts

wowzer Community Regular

I had a horrible night last night. I must have some how gotten glutened. I'm just not sure if it was from yesterday or the day before. I had horrible night sweats, I had to change my nightgown in the middle of the night. I havent' had that bad of a reaction since going gluten free the beginning of the year. That used to happen to me all the time pre gluten free. It was one of the first symptoms to go away. I also have itchy red bumps here and there on my body. Some hurt to touch and some itch. I have been on diflocan for about 6 weeks. As long as I'm taking it, I don't wake up with a mouth full of mucus. Soon as I stop I feel like I have to blow my mouth in the morning. I do know that I'm more sensitive to gluten. I have checked cosmetic, body wash, lotion, shampoo, conditioner, medication. We did eat out Tuesday night which I know is risky. I am almost afraid to eat which isn't good either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

That does sound like a glutening to me. Are those typical glutening symptoms for you? It could be a delayed reaction from Tuesday, or you might have gotten cc'd by something completely random. It happens to me about once a year, a glutening where I just can't pinpoint the reason. I hope you feel better soon!

Pauliina

wowzer Community Regular

I haven't totally figured out what is a typical gluten reaction. I haven't had what happened the other night that bad since going gluten free. Before I went off gluten it happened all of the time. It was one of the first symptoms to disappear. I originally went gluten free, because I thought many of the rashes I've had over the years could be DH. I do have a little sister with celiac disease. I also was having a lot of itching in the female area. I was treating it as a yeast infection, but still was itching. I did go to the gyno in January. Tested negative for yeast. She did a biopsy that came back spongiotic dermatitis (They don't know what it is). I googled that and found the natural cure was a gluten free diet. The itching did go away and so did all my rashes. My skin is actually soft and I'm not great about using lotion. I always had dry skin my whole life until I went gluten free. I did have a negative blood test, but decided to try the diet anyway. I do know I am more sensitive to gluten. I'm sure CC is an issue. My family doesnt' totally get it, but try. I have a son who works in a pizza place, so I'm sure he leaves me an unknown gluten trail. I refuse to wash his clothes. I guess I still haven't figured out how long from when I ingested gluten somehow to the reaction. Last night wasn't quite as bad so I'm hoping it is over. Although I have the itching in the female area back and I don't think it is yeast. It seems the more I get glutened, the more original symtoms that went away come back if that makes sense. I'm just hoping to break this cycle.

aikiducky Apprentice

In the end, all you can do is avoid gluten as well as you can. As I said, I get the occasional mystery glutening as well, but in general I seem to have gotten to a place where my life style is safe enough. My husband eats gluten still but we've figured out ways to minimize risk at home. I'm sure you will, too.

Pauliina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,808
    • Most Online (within 30 mins)
      7,748

    Mr House
    Newest Member
    Mr House
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.