Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yeah Her School Was Great!


Nikki'smom

Recommended Posts

Nikki'smom Apprentice

Yesterday i met with my Dd's school nurse to talk about al of this fun new gluten-free stuff and Celiac with her. She was WONDERFUL! She said this is the 1st time she has dealt with a Celiac child but said we can learn together! She brought in the head of the cafiteria and she was also great! She said she already put a call into her director to find a list of gluten-free food on the menu so we can put together a specail gluten-free list for my dd. theya re trying t figure out where in the chain of the school system is the dietican/nutricianist also for the help. She talked about having my dd and I pick items the friday before that are safe for her to eat and which days she will ahve them and putting them aside just for her so they don't get contaminated. I know my dd loved eating the school lunch so this was huge for me! Thenurse said she would keep a specail frozen treat so if the class had a suprise treat that she couldn't have she would have one too! Every one kept assuring me they was to make her as healthy as they can with no issues. since we seem to be making this up as we go along we al decided if it need to be tweeked then we tweek it :D

I also got to sit down with her teacher whom I think is great too! She said when ever possible she would try to buy gluten-free candy for treats for the kids so she is never left out! Love it! We also talked about me providing a specail bag just in case which is great. she will also keep a extra cookie treat in her class just in case. We also talked about when ever there is a party if possible I could help plan it and be there to help which i love doing any way B)

All parties involved agree to ry not to single her out with different items from the rest of the class and any chance that they get to get gluten-free stuff would be made.

I told them I am just a call away and to call me any time with any questions. they all said several time how open communication is great and that is what they want! I am so happy!

My dd loves school so much and is only in 2nd grade so this is huge to keep it fun and let her know every once in awhile she will get 'specail ' things that other kids don't get because she is 'special! LOL Of course I can see my dd milking the 'specail ' part big time! LOL

YEAH another great school!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

Congrats! My dd's teacher seems to be great this year, too.

But last year I tried to let my dd eat the school lunches. They really tried to do it right. They would change their gloves before touching her food, etc. But I believe she was getting glutened every day. She was still moody and was having tummy aches. And she got really bored pretty quick with her limited choices of food. So this year, she is taking her lunch every day. It is a BIG hassle, but I just can't handle her moodiness when she has gluten. Just a thought!

ptkds

Nikki'smom Apprentice

Thanks!

I figured I would at least try the lunches and even at worst case all she gets is the yogurt then that is fine she loves yogurt! LOL That i will also know is safe.

We have already been talking about ideas for lunch for her and so far she is ok with it. I just know last yr she loved getting l;unch at school so I have to at least try you know? I want to keep everything as normal as I can.

blueeyedmanda Community Regular

I am so glad to hear that the school was so great about the celiac and more than willing to help you out. this helps you put your mind at ease and lets your DD still enjoy buying her lunch. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.