Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Free


goldyjlox

Recommended Posts

goldyjlox Contributor

My specialist said that I have to go dairy free while I am healing and then I can introduce it back later, I have never had any problems with Dairy before..we ruled that one out. But I am wondering when I can start using it again? I am 11 days in and I think that its too early but my sons first birthday is next week and I am making him a gluten-free cake, so I can have some too!! But what about the icing?? I can have a bit of dairy cant I ??

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Most people go dairy lite atleast while healing and then add back b/c dairy can cause damage too!

I would wait a few months but it's personal choice...if you really want a piece with icing that's up to you!!!!!! Otherwise save yourself a peice with no icing!

Mango04 Enthusiast

If you're worried, just make the cake dairy-free :)

Arpita Apprentice

If you want substitutes for making icing here's a few --

instead of butter - Nucoa margarine, coconut butter, palm shortening

instead of milk -- coconut milk, soy milk (boxed Silk is good), or rice milk (but pretty thin)

There are pluses and minuses about going dairy free. I do hear that getting rid of it will help the gut to heal. Keep in mind also that it is common for dairy reactions to hit your mood or have any neurological symptoms (sometimes making you happy first and then grumpy later if casein-- the protein-- is the problem). The down side is that once you eliminate a food, you can actually become more sensitive to it. Then you may not end up adding it back it to your diet, because you will feel sick. Hope that helps.

goldyjlox Contributor

I saw my regular GP today and he said that I could reintroduce very small amount of Dairy with 4 weeks of going off it, I mean like a small amount in my tea,scrambled eggs and mashed potatos. I had a small amount in my mashed potatos last night and it didnt seem to bother me any. I jsut hate that Lacctais stuff, I actually bought some Dairyland Lactose free milk today at Walmart and I am going to try that. Its harder going Dairy free then Gluten Free as Milk is my thirst quentcher and I love chocolate so I am having huge cravings but not giving in.

Would you think that 4 weeks is too early to have Dairy?? Or should I wait maybe 3 months?? I would like to have it before Christmas (good holiday sweets).

Thanks

Mom23boys Contributor

Dairy free here...

I would stick with it about 3 months. They say it takes about 6ish weeks to get it out of your system give or take a little. Now you do know you can get chocolate w/o dairy. (we are new to the gluten so I cannot name gluten AND milk free yet) Chocolate Silk is not too bad.

goldyjlox Contributor

I talked to my Specialists receptionist today, she asked him about the dairy and he said 3 months. I have been drinking the Dairyland Lactose Free Milk and Icant tell the difference between that and my 1% milk..I had cereal today and it was great.

OKAY...whats this about dairy free chocolate and whats the name.....I am craving chocolate like CRAZY and there is Halloween candy in my house, its Gluten Free but I am happy to say I have not had any, no that is a lie...I had one M&M peanut, just one. But I want some of this DF chocolate.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

Did your specialist say "lactose-free" or "dairy/casein-free"? There's a huge difference between the 2 so it's important to make sure which one it is. Many of us are dairy/casein-free in order to completely avoid the casein protein, which is so similar to the gluten protein (both cause damage to the intestine). If it's casein-free, then try switching to some of the alternative "milks" such as soy, almond, or rice (make sure they're all gluten free & don't have barley in them!) Since I'm also soy intolerant, I've been drinking the Blue Diamond Almond Milk (the unsweetened versions, either vanilla or chocolate - very good with gluten free cookies too!!)

Good luck!

Dru Rookie

I am dairy, soy, gluten, egg (and several other things unrelated to this) free. I found a chocolate bar made by Terra Nostra brand called Ricemilk Choco. It says right on the wrapper that it is gluten free and "non-dairy" ingredients. The ingredients are all vegan (according to the wrapper) ...

...but it does say that it "may contain traces of dairy, peanuts, and soy." I react pretty badly to both dairy and soy and have not had a reaction to this despite that warning. I would not recommend it to someone who has an anaphylatic reaction to those allergens, but it should be safe for those who are just giving up dairy for a few months and have no known allergy.

There are a couple of other chocolate bars that I have also found at my local health food store (Earth Fare) but they do not specifically say gluten-free on the wrapper and I am too new to this who thing to recommend them. I'm sure if you go to the health food store and ask they may be able to find some other options for you as well. When looking for dairy free it is always best to look at the dark chocolate bars. Also, if you can have soy, there are a lot more options out there.

Also, Enjoy Life brand chocolate chips are gluten and dairy free. That mixed with a good dairy free version of a gluten-free cookie recipe could result in some awesome chocolate chip cookies :) I would post a recipe if I had one.

Mom23boys Contributor
There are a couple of other chocolate bars that I have also found at my local health food store (Earth Fare) but they do not specifically say gluten-free on the wrapper and I am too new to this who thing to recommend them.

That is my problem. I've been dairy free so long that I don't even think about it. I'm to new to the gluten free and not comfy with that part yet.

Looking to the dark chocolate is the best way to start. Obviously milk chocolate and white chocolate are out. We eliminate some artificials too and I can still find 1 or 2 choices at a regular store.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,877
    • Most Online (within 30 mins)
      7,748

    Ruth Margaret
    Newest Member
    Ruth Margaret
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.