Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 9 Month Old

amandadn

Recommended Posts

amandadn Newbie
amandadn
Posted

We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kevieb Newbie
kevieb
Posted

she is too young for the tests to be accurate---some young kids do not produce Ttg antibodies until they are older. that being said, it is still good to test if you suspect it. kids that young can react to alot of different foods----and alot of them will outgrow those intolerances.

gfpaperdoll Rookie
gfpaperdoll
Posted

Just test thru Enterolab.com & get the gene test - because they test for all the gluten problem genes not just DQ2 & DQ8

& a lot of kids do not outgrow those allergies or food problems - they just keep getting worse, at least mine did. & if it is a gluten problem that will never go away...

maggiemom Newbie
maggiemom
Posted
We are going to see the doctor next week to talk about the chances she has celiac and get the blood test done. I took her off wheat because of her reactions, but she needs to have it in her system for the test. Does anyone know how long I need to give it to her for the test to be accorate?

Thanks

I'm going in on Monday to discuss my 12 month old and chances of Celiac...what made you have your daughter tested? Do you or a family member have it? Just wondering...

Janeti Apprentice
Janeti
Posted

I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

amandadn Newbie
amandadn
Posted
  • Author
I'm curious also...When my son(now22) was 5 days old, he stopped breathing. Thanks to my mom, who was a nurse, she did cpr on him, and got him breathing. It seemed forever til the ambulance came, I don't think he would have survived. The Dr claimed he was allergic. Growing up, he had projectile vomiting, never slept and had a chronic cough(up until this past June, from the time he was an infant)chronic ear infections, etc...Last year when he was away at college, he ran a fever of 104, got dehydrated, and we had to bring him to the hospital to be infused. This past July, after developing DH, I knew that he had celiacs, and he started a gluten free diet. For the first time in 22 years, he is not sick. That chronic cough that used to keep him up all night is GONE!!! He is now back at college, and when I talk to him, I feel like crying, but now its due to happiness. We are waiting for the dna results from enterolab, but I think we know the answer. Hopefully you and your baby will never have this happen. Janet

Thank you all for your info...We went to the doctor today and her doctor wants the celiac panel test done. The only problem is that she is on a glyten free diet. I am pretty sure that she has to have it in her system for an accutate. So I am not sure what to do...anyone have any ideas?

gfpaperdoll Rookie
gfpaperdoll
Posted

Fire your doctor & test thru Enterolab.com ?? :D

It is okay that you know more than your doctor - you are the Mother & in charge of her health for the next 20 years - or until she is taking care of your health!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Janeti Apprentice
Janeti
Posted

I too think that the most accurate way to diagnose is through enterolab. Babies are not able to produce the antibodies needed for the blood test.(taken from the book"gluten free for dummies") My son suffered so much growing up, especially these past 4 years when he wasn't able to keep any food in stomach. I would just cut to the chase, and do the DNA testing, especially if she is now gluten free. My best wishes for your little girl...Janet

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.