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Statistics & Children

dbuhl79

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dbuhl79 Contributor
dbuhl79
Posted

Does anyone know of the percentage of chance you will pass this on to your children when your spouse is a non-celiac?

Secondly at what point do you get your children tested? Do you sit and wait for symptoms to appear?

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lovegrov Collaborator
lovegrov
Posted

I cannot remember the specific percentage but it's at least 10 percent -- more, I think.

All top experts say that all first-degree relatives should be tested, even in the absence of symptoms. I know of children who had no symptoms but came back highly positive. My parents, siblings and children all got tested. My 70-year-old father was positive on all tests, including the biopsy.

richard

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Richard,

Thanks. I appreciate the much needed information!

tarnalberry Community Regular
tarnalberry
Posted

I thought the chances of a first degree relative having it were reported in Fasano's study as being 1 in 20 - so 5%.

Mom22 Apprentice
Mom22
Posted

Dana,

Just wanted to share our story....our 9 year old son was diagnosed via biopsy in April of this year. Only symptom was constipation which led to further testing. Our 4 year old daughter was then screened via the celiac panel and her #'s were triple of those of our son's. She was asymptomatic. She then had a biopsy and tested positive for celiac in May of this year. My husband and I have both had the initial blood screening and I am definately negative and my husband has seen Dr. Fasano and is currently having more tests done to confirm, as his #'s are all elevated. My mother in law has also had the blood screen and her levels are elevated, as well. My father in law, so far has not been screened, but even if #'s were elevated stated he was not going to change his diet.

Mom 2 2 :D

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Mom22,

Thanks for the input. We're planning a family in the near future and I just want to be aware of what to potentialy keep my eyes open for in the future!

I appreciate all the input!

darlindeb25 Collaborator
darlindeb25
Posted

my sister and i both went gluten-free a little over 3 yrs ago and just 2 weeks ago my dad was told to go gluten-free--none of my 5 kids want to be tested as of yet, but i suspect that at least 2 of them have it--my sister has 3 kids--one has been tested and came back negative--time will tell--deb <_<

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cdobbs Rookie
cdobbs
Posted

my father was diagnosed biopsy confirmed with celiac disease so i had myself and 2 children tested. myself and 2 yr old came back with celiac disease and my 5 yr old came back with the sensitivity. we also had my brother checked and he was fine. havent had my husband checked yet. dont know if he wants to give up all his favorites outside the home or not.

cdobbs

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

It'd be best to ask your doctor when to get your child tested. I supose after they start eating food and all.

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