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Help My Son My Be Celiac


mom2matt

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mom2matt Newbie

Hello All,

My Son under went an EDG or is EGD. The reason was for ab pain. Well they found 4 ulcers on his Stomach, then she told me his small Intestine was diffrent, then she told me to take him to lab to have a full celiac panel done. I'm worried. My son is a Type 1 Diabetic, and asthma. He is a very crankey boy, my opinion. What are the Panel of test she ordered, and what did the small intestine biopsy come back "Diffrent" I'm lost I don't know anything about Celiac and no one in my family has it... ANY INFO would be great...

Thanks

Kathy Ellis

Fort Worth Tx

Insulin is not a cure!


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confused Community Regular

It probably means his villi were either flat or has some flattening to them. I would ask them if that is what she meant. If he has flattening of his villi, then he really wont need the celiac panel cause the egd is the golden standard of of diagnosis of celiac.

You have came to the right place for questions. Feel free to ask anyone anything.

paula

gfpaperdoll Rookie

Kathy, there is a great Dallas support group. PM me if you do not find the link on google... Well your son's asthma should go away on the gluten free diet. I am not up on diabetes but it is connected to the gluten problem & I think when a diabetic is on the gluten free diet that it makes it easier to control - but I am sure you can talk to some of the people that have both - it is fairly common. The doctors are now diagnosing people that have asthma & diabetes with celiac because they recognize them as symptoms & are running the tests. There is a diabetic speicalist doctor in Austin, Texas that is trying to get all doctors to test ALL their diebetic patients for celiac - sounds like she might be making some progress!!!!!

Celiac may have a steep learning curve in the beginning but your child will be soooooooo much healthier. There is also something called ROCK groups (Raising Our Celiac Kids).

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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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