Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Feels/looks Tired


buffettbride

Recommended Posts

buffettbride Enthusiast

DD always seems tired. I have a heck of a time getting her out of bed in the morning. She is 10. She goes to bed about 8:30 or 9pm and wakes up around 6am. I could adjust her bedtime by about a half hour and get her to bed shortly after 8, but not much earlier as we're usually just finishing up with dinner around 7 or 7:30 and she needs to shower, do chores, finish homework, etc.

She definitely seems more worn out than other kids at school, though, and her teacher even commented she seems more tired.

I suppose it could be Celiac related, although she is gluten-free now and has far less going on busy-wise in her life now than she did this time last year before diagnosis.

We make sure she has a full (32 oz) water bottle every day and she fills it up once while at school, too.

What else can I do to help her be more rested and energetic?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EBsMom Apprentice
What else can I do to help her be more rested and energetic?

My dd is also 10 and went gluten-free around the same time that your dd did, I believe (4 months ago?) She has periods of being very tired, also. I've been making her go to bed a bit earlier and I've been giving her a multivite. I've also been pushing the iron-rich foods. I've recently decided that if this persists past 6 months, I'm going to ask to have her iron level checked. I'm assuming that my dd is still healing - after all, she was sick for a while - and she has lots more activity to contend with now that school has resumed. But still....I share your concern.

Rho

buffettbride Enthusiast
My dd is also 10 and went gluten-free around the same time that your dd did, I believe (4 months ago?) She has periods of being very tired, also. I've been making her go to bed a bit earlier and I've been giving her a multivite. I've also been pushing the iron-rich foods. I've recently decided that if this persists past 6 months, I'm going to ask to have her iron level checked. I'm assuming that my dd is still healing - after all, she was sick for a while - and she has lots more activity to contend with now that school has resumed. But still....I share your concern.

Rho

I'm glad to know I'm not alone. It seems I could come up with a reason every week to take her to the doctor. We've been diligent about the daily vitamins. I suspect her deficindies might be iron related, but probably more B-vitamin related. School is definitely a factor too--it really is hard work and obviously more tiring than summer vacation.

Virgie Apprentice

Hi! I so know how you feel. I am having issues with fatigue in both of my children - son 18 & Senior in High School has Ulcerative Colitis - remission ?? daughter 13 & an 8th grader dx 9/07 with Celiac. Both have a very hard time getting up in the morning. It doesn't seem to matter when they go to bed. The 2nd day of school my daughter fell asleep on the couch at 6:00 p.m. & didn't get up unti 6:00 AM. Very tired but then I too think that she is still healing. Both kids have had complete bloodwork up and everything seems ok. But they also both have a middle ear infection (just was at the doctor yesterday, again!) so I suppose they could be tired from that. But it is very frustrating because especially for my son the fatigue is so bad that he can not go to school until about 11:00 some days. He hates missing too as he misses out on those classes and he does like those subjects. So it isn't anything like they want to get out of school.

FWIW I do agree that school is more tiring than summer vacation. My son usually doesn't have any UC issues in the summer which I feel is because he can sleep as much as he wants, eats when & what he wants, no homework, lots less stress, etc. So hopefully soon they can all get into a better schedule and feel better and not be so tired. My kids tend to look like racoons with the circles under their eyes.

Hope your kiddo has more energy soon. :)

Take care.

Virgie

I'm glad to know I'm not alone. It seems I could come up with a reason every week to take her to the doctor. We've been diligent about the daily vitamins. I suspect her deficindies might be iron related, but probably more B-vitamin related. School is definitely a factor too--it really is hard work and obviously more tiring than summer vacation.
Nathan's mom Apprentice

Make her an appointment and have her vitamin levels, thyroid, and iron storage levels checked. For my friends daughter, 10 was when she started having mood swings, being tired all the time, etc. She has hypothyroidism. They think the prepuberty hormones kicking in triggered it.

And of course, with Celiac, there is a higher chance of other autoimmune things coming into play.

Take care,

Debbie

gfpaperdoll Rookie

I think B12, a sublingual, is very important, even if their levels test okay - give the B12, it will not hurt them, the excess is excreted in the urine.

At least 9 hours of sleep. Also, make sure that their room is absolutely dark - no clock lights, no night lights, no light at all, even if you have to black out the windows with something - the room needs to be black for proper sleep. some people forget that...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,002
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.