Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Rash Be Dh?

maddycat

By maddycat
in Dermatitis Herpetiformis

Recommended Posts

maddycat Contributor
maddycat
Posted

I was loosly diagnosed with celiac about a year ago (no biopsy) and have been gluten free since. In the past several months I have been getting a recurring rash on the inside of my right elbow. It starts out with tiny red bumps and spreads outward in a ring- centered right around my inner elbow fold. It is slightly itchy. The think that makes me suspect it might be from gluten is I also have been getting diarrhea right when the rash breaks out (probably from cc, getting glutened issues). The rash usually clears up in a couple of days on it's own- I haven't been putting anything on it.

Any thoughts on this? Is it worth getting in to see a dermatologist when I have an active rash?

Thanks,

Marcia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Marcia,

If you were loosely diagnosed with Celiac, do you follow the diet loosely as well?

I would revisit your diet and make sure that it's clean from gluten including lipsticks, shampoos, shared toaster or cc from home or restaurants.

If your rash does not clear up, then perhaps see a doctor.

missy'smom Collaborator
missy'smom
Posted

The Celiac Sprue Association website has photos of and informaion about DH.

maddycat Contributor
maddycat
Posted
  • Author
Marcia,

If you were loosely diagnosed with Celiac, do you follow the diet loosely as well?

I would revisit your diet and make sure that it's clean from gluten including lipsticks, shampoos, shared toaster or cc from home or restaurants.

No, I do follow the diet as closely as I can. I am very careful at home, have a separate toaster, etc, am careful about reading labels, choose gluten-free cosmetics, etc. I do eat out about 1-2 times a week but...

this question is not about how careful I eat, it is about whether the rash is from gluten, or possibly something else...

LoriC Apprentice
LoriC
Posted
No, I do follow the diet as closely as I can. I am very careful at home, have a separate toaster, etc, am careful about reading labels, choose gluten-free cosmetics, etc. I do eat out about 1-2 times a week but...

this question is not about how careful I eat, it is about whether the rash is from gluten, or possibly something else...

HI, When my DH first started it was last year, and it showed up on the inside folds of my arm (elbow area) each side of my neck, across my belly, and lower back, neck/hairline...after doctoring with my family dr. i went to see a derm. in Aug of this year finally, he diagnosed it DH, now by time i went to see him..the rash had cleared up everywhere but my lower back, pubic area, neck/hairline, after taking dapsone for almost 2 months now and on a gluten-free diet for a month, my rash is pretty much gone.

Your rash may be clearing up because you are already gluten-free and watching closely. thats just my opinion tho. I'm very new to this..only sharing where my rash first started.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...