Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated With My 9 Month Old Daughters Test Results


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

I hope someone out there can give me more of an understanding about the relevence of celiac blood test results. My nine month old daughter has had atopic eczema since we introduced wheat and gluten. she also flared up when we gave her food with thickeners in it. She has had some weight loss that the doctors are not too concerned about but also used to poo six times a day and they were a bit on the mushy side. She was always an irritable child and also had a type of itchy eczema that came up on her tummy that looked like chickenpox. We pulled all of the gluten out of her diet and the results are remarkable. She poos only once or twice a day now, they are a lot more solid she is happier within herself and the eczema is gone. We took her to a paediatrician who took some blood and the tests came back negative I am so frustrated I just want to know whats going on. We also tried her on wheat free rye bread and there was still a reaction so it's definately not just a wheat allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Test results can be unreliable in babies and young children, simply because of their immature immune system. You have a positive response to removing gluten from the diet. At this age - that's good enough for now. So many choices - sweet potatoe, potatoe, rice, carrots, chicken blended in the blender. I never fed my kids dairy or wheat until they were older....so I have no experience with babies reacting to food. They got sick as older children.

You dont need permission or a test result to go gluten free.

Give your baby what makes her have normal poops ;)

Sandy

Nancym Enthusiast

They're unreliable in adults too.

Ursa Major Collaborator

As previously mentioned, those blood tests are extremely unreliable in children under six, and especially in babies. The best test is the diet response. You know that gluten is making her sick, so just don't give it to her, and you'll have a happy, healthy baby!

I also wouldn't give her any dairy for a long time yet, and the same goes for soy.

Eczema is ALWAYS caused by food intolerances. If it cleared up on a gluten-free diet, and her poops went to normal, you definitely have your answer. You don't need a doctor's permission to change your own child's diet, especially because the gluten-free diet is a perfectly safe, healthy diet.

vanillazeis Rookie

agreed with everyone, celiac testing is extremely unreliable. I also dont feed my babies any of the top allergens (wheat,dairy, soy, eggs, fish, shellfish, peanuts or treenuts) before one. The last 4 i listed my kiddos allergist recommends waiting until 3. You might consider allergy testing, i've seen many kiddos that are allergic to wheat, rye and barley, but not oats. Do you or your husband have celiac? I was just wondering what makes you suspect celiac in a 9 month old. When my almost 3 year old developed symptoms i thought it was a peanut allergy, because she always got sick after i fed her peanut butter sandwiches. Turned out to be celiac. On my 9 month old my 3 year olds gi dr told me to introduce gluten at 12 months, we will blood test him at 18 months, and if it comes back negative we will retest anytime i feel like he has symptoms. my dr told me that with out a doubt my 9 month olds test would come back negative if we did it right now. you need atleast 6 months of eating gluten in such a little one. Hope that helps, good luck, dont be frustrated, your the mom and like everyone says, you can make her gluten free if you want!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,247
    • Most Online (within 30 mins)
      7,748

    Jbamf8791
    Newest Member
    Jbamf8791
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...