Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten, Casein And Peanut Butter

Guest Happynwgal2

By Guest Happynwgal2
in Coping with Celiac Disease

Recommended Posts

Guest Happynwgal2
Guest Happynwgal2
Posted

I need help!

I am going through a really frustrating time. Much stress in my life due to learning a new job, but that will soon be over and my life will take on a somewhat more tranquil state again... At least as tranquil as it is without learning a new job.

My problem is that I thought for a long time I could not have dairy products. So I cut them out, but did not feel much better - still had gas and cramping, although not as much as when I used to eat gluten, pre-diagnose. I have added cheese to my diet again, but am not feeling much better. I have cut out peanut butter which I love (the pure stuff without any additives). I am not feeling better.

Now I am back to square one, and find myself able to eat only some veg's, organic poultry, and rice. And, of course, fish, which I love. Many fruits make my stomach upset - a large glass of orange juice gives me severe cramps.

The gluten free flours I tried earlier this year feels like a lump in my stomach when I eat them.

Basically, I am finding my diet so restricted that I want to cry. And feel sorry for myself. I am 90 % sure that I absolutely CANNOT have anything dairy - not even once in a while.

One day this week I had a good day without any stomach problems; I did not eat anything with dairy in it the day before. I just don't trust that it was only because I did not eat anything with dairy in it.

I also seem to not sleep well, or I am tired and run down and drag my feet when I have dairy, and then sometimes I cannot sleep at all; have headaches and just feel completely out of it.

HELP. What the heck am I to eat???

Could I, in addition to being a Celiac and not being able to eat dairy foods, also have IBS??? Could all my additional sensitivities be IBS, whatever that REALLY is? I am skeptical of IBS because it seems like such a "catch all" for stuff doctors simply don't know what else to call...

Am I ready for a completely combination gluten/casein free diet? Good grief, what's left that I can eat???

Sorry to sound so negative - I just need to vent today... :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

I know you've probably heard this a bunch of times, but it sounds like you have a bad stomach reaction every time you eat something starchy or sugary, so it's probably a yeast (candida) issue. Are you prone to yeast infections, or do you get that thrush in your mouth, especially after fruit or baked goods?

gfpaperdoll Rookie
gfpaperdoll
Posted

I think that no one should drink orange juice. It is just too much sugar at once, bad for the stomach & bad for your joints. Try an orange instead. You should most definitely not be eating dairy. I am sure that it is keeping your system in turmoil.

You need to eat a very good diet of meat, veggies, fruit & nuts.

be sure to add in things like baked sweet potatoes, jicama, kale, cabbage, carrots and other veggies.

Sauerkraut is good for your gut...

cook your fruit if you cannot handle fruit. Are you eating a lot of sugar? Grains? I would also check into candida, high lectin foods, & high oxalate foods.

I am gluten-free/DF, grain free, legume free, potato free & beef free - because I get a stomach ache to beef. Not that I have had any organic grass fed beef... I also only drink water.

I recommend the books "dangerous grains", "Eat Right for your blood type" (not a gluten-free book but just cross out the wheat & dairy parts), "Super Foods" again not a gluten-free book but a good refresher on nutritious foods.

Guest Happynwgal2
Guest Happynwgal2
Posted
I know you've probably heard this a bunch of times, but it sounds like you have a bad stomach reaction every time you eat something starchy or sugary, so it's probably a yeast (candida) issue. Are you prone to yeast infections, or do you get that thrush in your mouth, especially after fruit or baked goods?

Several years ago I actually went through a caprylic acid "cure" to kill candida since I have had two yeast infections and several small ones that I have gotten rid of before they became really bad. I had forgotten about candida until I read you response. I know I cannot eat yeast bread since it makes my stomach well up and then very crampy.

Thanks for reminding me about yeast (candida) - there are so many things I am fairly sure I cannot eat, thus the possibility that sugary and starchy foods also make me sick, makes a lot of sense with that in mind. I do not have any thrush, but my stomach hurts and I feel really sick. I have a lot of headaches that I simply don't understand the reason for...

It would also make sense since I am absolutely addicted to sugar and sweets. I think you sometimes crave what makes you really sick - I believe that is one of the problems alcoholics have...

I think I am in denial about how much I react to - it is SO frustrating not to be able to eat "normally" - and that I have to stay away from not only gluten, but many other things, too.

How do you all deal with this? Right now I am not dealing well with this at all... I want to scream... And cry, because the longer I try to deal with my sensitivities, the more it seems like I find... Good thing I like veg's and fish - it seems like that's about all I can eat - on top of some rice... Yep, I AM feeling a bit sorry for myself tonight... :wacko::unsure::(

JNBunnie1 Community Regular
JNBunnie1
Posted
Several years ago I actually went through a caprylic acid "cure" to kill candida since I have had two yeast infections and several small ones that I have gotten rid of before they became really bad. I had forgotten about candida until I read you response. I know I cannot eat yeast bread since it makes my stomach well up and then very crampy.

Thanks for reminding me about yeast (candida) - there are so many things I am fairly sure I cannot eat, thus the possibility that sugary and starchy foods also make me sick, makes a lot of sense with that in mind. I do not have any thrush, but my stomach hurts and I feel really sick. I have a lot of headaches that I simply don't understand the reason for...

It would also make sense since I am absolutely addicted to sugar and sweets. I think you sometimes crave what makes you really sick - I believe that is one of the problems alcoholics have...

I think I am in denial about how much I react to - it is SO frustrating not to be able to eat "normally" - and that I have to stay away from not only gluten, but many other things, too.

How do you all deal with this? Right now I am not dealing well with this at all... I want to scream... And cry, because the longer I try to deal with my sensitivities, the more it seems like I find... Good thing I like veg's and fish - it seems like that's about all I can eat - on top of some rice... Yep, I AM feeling a bit sorry for myself tonight... :wacko::unsure::(

Oh, that's no fun. What I've studied about candidiasis is that the yeast is what's making you crave the sweets, because that's what it thrives on. And your gut and the things living in your gut have a much larger effect on the things you choose to do than you might think. you might try googling "candida diet", you'll get a lot of responses. Oh, darnit, there's somebody on the board with a lot of experience in it and I can't think who, I'll tell you if it comes to me. But the headaches and stomch sensitivity really sound like a yeast thing, especially since you're prone to yeast infections.

Guest Happynwgal2
Guest Happynwgal2
Posted
Oh, darnit, there's somebody on the board with a lot of experience in it and I can't think who, I'll tell you if it comes to me. But the headaches and stomch sensitivity really sound like a yeast thing, especially since you're prone to yeast infections.

I would be very grateful for any information about the yeast infection/candida connection. Maybe I have finally solved my headache problem... If you remember who has the experience here, please let me know, and I will send a note to them, asking if that person would be willing to share some of their experiences with me. I am in desperate need of help to understand why I am just not feeling better...

Thanks for answering my post... :)

NoGluGirl Contributor
NoGluGirl
Posted

Dear Happynwgal2,

I have an essay I wrote on Candida. The pathology is quite fascinating. Just PM me with your personal e-mail address. It must be sent in an attachment, as it is a Word document. Do not worry, you are not alone! My stomach is very bloated and upset from the yeast as well. I crave sugar all the time, and peanut butter is something I cannot even keep in the house, because I will devour the entire jar in several days!

You know why? Candida feeds on peanuts and peanut butter, and other naturally moldy foods. Pistachios are another one to stay away from. My tongue turns white upon eating fruit. Too much starchy foods irritate my gut as well. I was doing great the first two months on the gluten-free diet, but then a course of Flagyl messed me up. I feel the same way I did before going on the diet a lot again. I may also have Lyme.

Sincerely,

NoGluGirl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.