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Getting Better, How Long?


deetee

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deetee Newbie

i was just recently 'rediagnosed' with celiac- long story. my question is i had a colonscopy and upper endoscopy done which verified the diagnosis. i immediatley started the gluten free diet. the first 7-10 days i was amazed that i was having normal bowel movements right away. however after that time my bowel movements became abnormal again like pre diet. am i somehow getting gluten that i am not aware of or does it just take more time till i see a difference.


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scotty Explorer

if you have only been on two weeks you got a long way to go. the intial amazing recovery is due to the fact your body is used to a process. and since you are not damaging it anymore, at first it can be quite relieving for the intestines. but there is severe damage that needs immense reparations. your intestines were probably moving more regularly at first; now, more clear, there are wounds so to speak. you gotta remember you more than likely have no villi. it's propbably pretty smooth in there

goldyjlox Contributor

I am close to 2 months gluten-free and I am noticing a difference. My body seems to be healing, I had constipation for many years and finally I am having a regular bowel movement...amazing that we can get so excited over that!!! Apparently my Villi was completely flat, doc said that it was severe celiac...I feel 100% better already...not been sick once since being gluten-free, so I guess that I am doing something right.

I am sure that everyone is different in thier healing process. Are you consuming dairy products?? This can slow down the healing, I have to be DF for 3 months. Also I never got sick to often so I am still not sure how I am suppost to feel...bloating has disappeared so I am taking that as a good sign.

Good luck.

Jess

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    • trents
      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
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