Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know If You Are Healing?


goldyjlox

Recommended Posts

goldyjlox Contributor

I have been gluten free since August, I have been doing good at it I think. I have not been sick yet so I must be doing something right, right?? I used to have a huge bloated belly all the time, looked like I was pregnant, and I was always constipated...that was my problem, hardly ever D but always constipated. Now, I have lost my bloated belly (now its just baby fat!!) My face has colour so I dont look like the ealking dead, I have regular bowel movements, more energy, the tinglying feeling has left my fingers and toes, and those painful little bumps are not on my fingers anymore. So this would sound like I am healing right?? Here I thought that I would lose some weight by not eating the junky foods and become healthier but instead I have gained weight!!!! I am hardly eating much!!

I have not had any gluten that I know of, I have cheated a bit on the dairy....I am only off it for 3 months...but I never got any reaction to any that I have had.

So how do you tell if you are healing?? I would assume that eating gluten-free and not getting sick would be a good indication but I was never a sick person so I am a bit confused on how I should feel.

Sorry If I dont make any sense.

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

For me, other than the GI symptoms going away. I had more energy and my overall personality was going back towards normal. I was not moping around and sad. I suddenly felt like a new person again....my old self :)

It does vary person to person though.

Vykt0r Rookie

I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

Gemini Experienced
I would imagine you'd also have less of an appetite considering the fact that celiac causes malaborption and therefore constant hunger in a lot of people.

I think it's actually the opposite in most people. When I was eating gluten, I was never as hungry as I am now because all the bloating makes you feel full all the time. I would like a bird and feel full. Plus, with all the inflammation going on, hunger was not an issue. When you start to heal and your food is being absorbed like it should, you begin to realize what hunger really feels like. Things are working normally.

Malabsorption just means you are not absorbing your nutrients from food and has little to do with actual hunger pains themselves.

How does a person know they are healing? By all the things you described above. That's a really good sign. The weight gain can surprise people but it's common sense. You are absorbing calories and even though you may not be eating junk food anymore, a calorie is a calorie is a calorie! If you take in more than you burn off, you will gain weight. With each passing decade of life, your metabolism slows down and you have to less and less or move around more to compensate.

I snack on fruit and veggies all day to offset this as not only did I discover I had celiac disease, I went through menopause at the same time. Talk about a metabolism killer! :huh:

If your symptoms are disappearing and your color is good and you have energy, trust what your body is telling you.....you are doing a good job!

VioletBlue Contributor

I think the food issues have to do with where you were when you were diagnosed. I was always hungry and I had gained significant weight in the years prior to diagnosis. Now hunger is no longer the constant issue it once was, and even when I am hungry it no longer has the urgent do or die attitude to it that used to exist.

So I have lost weight since going gluten free. But I also don't eat much of any grains or special gluten free foods. I eat mostly whole foods now including dairy which I've never had a problem with. Prior to diagnosis I ate breads and pastas and cookies and cakes and frozen and pre-packaged foods all of which were bound to be higher in calories. So I think it depends on where you were prior to diagnosis and how you choose to pursue the gluten free diet as to what effect the diet has on your weight.

For me the most obvious immediate signs of healing were that the acid reflex and the diarrhea went away. My mood and outlook also improved significantly. And my nails have finally begun to grow again. I think any significant change along those lines is an indication of healing. But then we all express the disease differently, so healing is different for all of us.

It also takes time. A couple months is just the beginning. I've been gluten free since last December and my nails have just only begun to reflect that. All the other things that are secondary like the vitamin and mineral deficiencies take months and months and sometimes years to reverse themselves.

Violet

goldyjlox Contributor

Thanks. I am glsd to know that I am going about this right, the dietition said that I really did not need alot of her help as it sounds like I am doing a great job. My nails seem to grow more now also, I used to have a horrible time with my nails....constant nail biter. I do notice that I am more hungry now, I guess I have room in there besides air. Butr I have to work on eating a bit better and then at least I will feel better.

Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.