Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take Before Symptoms Subside


marklen

Recommended Posts

marklen Rookie

Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Andy-oh Rookie
Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark

hi Mark

I think i'm in the same boat as you, i have also been gluten free for one week after years of mysterious symptoms, which my doctor put down to depression, and am also curious as to how long it takes before symptoms began to subside, ive been up and down all week more or less, one minute tired the next energetic, i have periods where my mood is elevated then i feel down for a period of time, one thing is for sure it is certainly having an affect on me, either that or i'm Bi Polar :), and i think my good periods are beginning to out weigh my bad periods, partiularly towards the end of the week.I suppose everyone is different.

I would like to know if anyone who has had depression from gluten intolerence has had similar experiences when going gluten free ?

Andy.

p.s Mark have you been diagnosed or are you just experimenting ?

Osprey101 Newbie

For me, the biggest symptom was the Big D. After suffering two months, my PA suggested it was either IBD or celiac- which was a red flag, as I have close relatives with it. After three days, things improved- then got worse for two days. Then two good days, one bad day, and about a week of very good days. After the first week or two, the mouth pain I was experiencing- not aphthous ulcers, but something very similar- went away, as did the thin, papery texture to the mucosal lining of my mouth.

Energy returned after about the first week, but as I noted- I was only sick for two months, which has to be some kind of record when it comes to celiac diagnosis.

Try sublingual B12, and you might load up on B vitamins in general. I'm not sure, but I think it's the water-soluble vitamins that are depleted preferentially; it'll still be tough for your system to absorb them until the villi heal, but a little more can't hurt. Not so much the fat-soluble vitamins, as it's easier to be harmed by consuming too much of them.

Matilda Enthusiast

..

Andy-oh Rookie

I didn't realise I had other symptoms until they started going away. What I really remember most vividly was feeling like I'd woken up.

Ive have had that same feeling, almost as if my my eyes were less tired, exactly how you describe, my eyes feel as though they are wider and more open.Ive not been diagnosed with gluten intolerence but from what i'm learning from this excellent board i have alot in common with people here, i'm noticing people wrote the same things i have done, for instance someone in a thread mention that when going gluten free for the first time it felt like they had a bipolar disorder, this is what i'm experiencing now, feeling good for periods punctuated by depression and a feeling of ditatchment as you noted in your post, i'm hoping the good periods will soon out-weigh the bad/depression moments.

It alsmot feels like the old me it trying to break out.

marklen Rookie

Thank you all so much for your replies. I appreciate your comments and thoughts.

Kind regards.

Mark

WW340 Rookie

My GI symptoms improved right away. The hive like itching did not go away for several weeks, and only after I changed all my soaps, shampoo and cosmetics to gluten free.

It took many months for the fatigue to improve significantly. That has really only improved in the last month. I have been gluten free since January.

Your recovery will also depend on how many mistakes and cross contaminations you encounter along the way.

I also had some ups and downs along the way. I was hungry all the time in the beginning of the diet. That did go away. At about 3 - 4 months I had some emotional ups and downs and frustrations. Once I got past that hump, recovery has been pretty much straight up and getting better every day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



culhanegirl Newbie
Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark

Hi Mark,

I completely understand what you are going through. I have had hives for the past five months and let me tell you there is hope. I have been on steroids and three prescription antihistamines and still had to go to the emergency room three separate times to get a steroid and benadryl IV because I was literally covered with hives as big as dinner plates and had swollen lips, eyes, jaw line, etc. It is like torture!! But after going gluten free I noticed a dramatic difference within two weeks with the hives completely going away by the six week mark. However, at week 7 I had a really bad episode where they returned in full force. I think I got glutened by processed foods that were cross contaminated or by my well-meaning mother who made me a gluten free birthday cake. Anyway, since that time I have eaten only foods I prepare myself and nothing packaged and no restaurant meals. So basically I have been eating fresh fruits and vegetables, legumes, and meats, and salad dressings I make myself. It's a pain but I will do anything to not have the hives. It's working because I have not had the hives since I recovered from the last attack two weeks ago. Make sure you watch out for cross contamination in restaurants, in processed foods (even foods that do not contain gluten but are made in factories that make products with gluten), and even in your own home if you live with others who eat gluten. Hope this helps. Hang in there, it does get better. And in a way the hives helped me because I have been trying my whole life to eat this healthy and it took fear of tortuous hives returning to make me eat this way! Tina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,671
    • Most Online (within 30 mins)
      7,748

    brad Mccarroll
    Newest Member
    brad Mccarroll
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.