Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take Before Symptoms Subside


marklen

Recommended Posts

marklen Rookie

Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Andy-oh Rookie
Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark

hi Mark

I think i'm in the same boat as you, i have also been gluten free for one week after years of mysterious symptoms, which my doctor put down to depression, and am also curious as to how long it takes before symptoms began to subside, ive been up and down all week more or less, one minute tired the next energetic, i have periods where my mood is elevated then i feel down for a period of time, one thing is for sure it is certainly having an affect on me, either that or i'm Bi Polar :), and i think my good periods are beginning to out weigh my bad periods, partiularly towards the end of the week.I suppose everyone is different.

I would like to know if anyone who has had depression from gluten intolerence has had similar experiences when going gluten free ?

Andy.

p.s Mark have you been diagnosed or are you just experimenting ?

Osprey101 Newbie

For me, the biggest symptom was the Big D. After suffering two months, my PA suggested it was either IBD or celiac- which was a red flag, as I have close relatives with it. After three days, things improved- then got worse for two days. Then two good days, one bad day, and about a week of very good days. After the first week or two, the mouth pain I was experiencing- not aphthous ulcers, but something very similar- went away, as did the thin, papery texture to the mucosal lining of my mouth.

Energy returned after about the first week, but as I noted- I was only sick for two months, which has to be some kind of record when it comes to celiac diagnosis.

Try sublingual B12, and you might load up on B vitamins in general. I'm not sure, but I think it's the water-soluble vitamins that are depleted preferentially; it'll still be tough for your system to absorb them until the villi heal, but a little more can't hurt. Not so much the fat-soluble vitamins, as it's easier to be harmed by consuming too much of them.

Matilda Enthusiast

..

Andy-oh Rookie

I didn't realise I had other symptoms until they started going away. What I really remember most vividly was feeling like I'd woken up.

Ive have had that same feeling, almost as if my my eyes were less tired, exactly how you describe, my eyes feel as though they are wider and more open.Ive not been diagnosed with gluten intolerence but from what i'm learning from this excellent board i have alot in common with people here, i'm noticing people wrote the same things i have done, for instance someone in a thread mention that when going gluten free for the first time it felt like they had a bipolar disorder, this is what i'm experiencing now, feeling good for periods punctuated by depression and a feeling of ditatchment as you noted in your post, i'm hoping the good periods will soon out-weigh the bad/depression moments.

It alsmot feels like the old me it trying to break out.

marklen Rookie

Thank you all so much for your replies. I appreciate your comments and thoughts.

Kind regards.

Mark

WW340 Rookie

My GI symptoms improved right away. The hive like itching did not go away for several weeks, and only after I changed all my soaps, shampoo and cosmetics to gluten free.

It took many months for the fatigue to improve significantly. That has really only improved in the last month. I have been gluten free since January.

Your recovery will also depend on how many mistakes and cross contaminations you encounter along the way.

I also had some ups and downs along the way. I was hungry all the time in the beginning of the diet. That did go away. At about 3 - 4 months I had some emotional ups and downs and frustrations. Once I got past that hump, recovery has been pretty much straight up and getting better every day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



culhanegirl Newbie
Hi guys,

I started my gluten free diet a week ago and was wondering how long each of you were on the diet before you noticed your symptoms cleared up? Not necessarily any intestinal damage, more like stuff like fatigue, etc. I have non-DH hives as part of my reaction and they are driving me nuts. Can't wait till they disappear.

Cheers,

Mark

Hi Mark,

I completely understand what you are going through. I have had hives for the past five months and let me tell you there is hope. I have been on steroids and three prescription antihistamines and still had to go to the emergency room three separate times to get a steroid and benadryl IV because I was literally covered with hives as big as dinner plates and had swollen lips, eyes, jaw line, etc. It is like torture!! But after going gluten free I noticed a dramatic difference within two weeks with the hives completely going away by the six week mark. However, at week 7 I had a really bad episode where they returned in full force. I think I got glutened by processed foods that were cross contaminated or by my well-meaning mother who made me a gluten free birthday cake. Anyway, since that time I have eaten only foods I prepare myself and nothing packaged and no restaurant meals. So basically I have been eating fresh fruits and vegetables, legumes, and meats, and salad dressings I make myself. It's a pain but I will do anything to not have the hives. It's working because I have not had the hives since I recovered from the last attack two weeks ago. Make sure you watch out for cross contamination in restaurants, in processed foods (even foods that do not contain gluten but are made in factories that make products with gluten), and even in your own home if you live with others who eat gluten. Hope this helps. Hang in there, it does get better. And in a way the hives helped me because I have been trying my whole life to eat this healthy and it took fear of tortuous hives returning to make me eat this way! Tina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

    2. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

    4. - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,667
    • Most Online (within 30 mins)
      7,748

    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.