Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Understand These Results! Please Help!


sharps45

Recommended Posts

sharps45 Apprentice

I went into my GP, and told him I was having some problems with oats (severe) and white breads (just gas), but no problem with pasta, pizza. My father and sister both had celiac (both also had diabetes and have passed away). Dr sent me for blood scan. Results according to him were 'borderline positive' meaning he said I had celiac. But then he told me that I could eat anything but those specific foods that caused me trouble. So now I'm not trusting his diagnosis. This is a small rural area, and a gastroenterologist is 100 miles away. So can you help me to interpret these? I'm not being lazy, I've spent a couple of hours going through the posts here and not finding the answers I need (or not understanding those I find).

The tests show a bunch of stuff under COMP. METABOLIC, but I don't think any of them are of a concern for this.

The following are things I don't understand

ALBUMIN mine= 4.0 Reference= 3.5 - 5.0

GLOBULIN mine= 3.3 Reference= 2.5 - 4.7

AST (SGOT) mine= 30 Reference= 5-45

ALT (SGPT) mine= 71 Reference= 5-65 flagged as H

ALK PHOS mine= 91 Reference= 50-136

IGA mine= 150 Reference= 81-463

TRANSGLUTAMINAS flagged A

tTG Ab, IgA mine= *6 Reference NEGATIVE <5 EQUIVOCAL 5-8 POSITIVE >8

TRANSGLUTAM IGG shows no result

tTG Ab, IgG mine= 4 Reference= NEGATIVE <7 EQUIVOCAL 7-10 POSITIVE >10

I'm assuming the 'flagged H' means high, but 'flagged A' ?? And what does the * by the 6 mean?

If anyone could help I'd really appreciate it, as my confidence in my local doc is not high at this moment. Thanks so much


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Hi

As I read it, they ran both the tissue transglutaminase IgA test and the tisue transglutaminase IgG test.

The Ttg IgA test was weakly positive at 6 as I read it.

But, had you been low-gluten for a while? I had. Then the numbers are often low.

The Ttg-tests ave very specific for celiac but some other things may cause a false positive but that is rare. You probably already looked it up on the internet.

I am in Europe, and a person like you would be sent to a biopsy of the duodenum or small intestine.

This is both because one gets money from the government with a positive diagnosis, and to make follow-up more accurate.

Of course you must avoid all gluten, not just the things you react to. But this is much easier if you have a proper diagnosis with endoscopy. Compliance might not be that good without a proper diagnosis.....

Family and friends might respect your dietary needs much more if you have a proper diagnosis.

I have no proper diagnosis and that makes it much harder to forbid them to spread gluten crumbs all over the kitchen etc. I wish I had a diagnosis.

nora

sharps45 Apprentice

This was a right off the street test, and I'd had spaghetti with garlic bread two nights before.

Jestgar Rising Star

You need to have been eating gluten for several months beforehand. Think about your diet, was it high in bread products, or had you already been avoiding them?

sharps45 Apprentice

It was high in gluten, except for oats, which I can't tolerate at all. Muffins or bread with dinner, whole grain cereals and Malt O Meal for breakfast, lots of pasta (love tortellini!). Since getting the diagnosis, I've backed off gluten almost entirely, but it's only been a couple of weeks.

Jestgar Rising Star

Maybe the best answer is that you caught this before you've done so much damage to your gut that all your numbers are high.

And I think the 'flagged A' means abnormal. not enough to call 'high', but enough to pay attention to.

sharps45 Apprentice

I think I'll go ahead and try to get in to see another doc. I'll try to find one around that knows something more than my current one. Thanks for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.