Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Or Not To Tell


Shotzy1313

Recommended Posts

Shotzy1313 Apprentice

Is anyone else embarrassed about having this? I have a stupid allergy to chicken and my friends jokingly make fun of me sometime because I can


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

I think that once you are eating gluten-free that you will gain weight & just look a lot healthier...

Not counting how energetic you will feel.

I think guys have a difficut time telling people they have a problem with food. If you do not want to say anything you do not have to. I on the other hand have to be careful not to be a nuisance... I have gotten more than a few of my friends & acquaintances to get tested & are now gluten-free & dairy free ! :)

At the office, this morning, there was breakfast for bosses day, bagels, muffins, rolls, lots of wheaty goodies... I went to the kitchen just to mingle & say good morning to a few people. Someone ask me why I did not have a plate & I just said "oh, I am allergic to wheat" while smiling & laughing like it is the most ridiculous thing in the world. Really people do not care what you eat. Your attitude will give them the clue. So until you are comfortable with it yourself you might want to just keep the info to yourself. Guys, I think, tend not to be as revealing about themselves as women.

Mom23boys Contributor
Your attitude will give them the clue.

Yes. Your (our) attitude is 95% of it IMO.

mtraezme Newbie

I tell people about it all the time. There's nothing I can do about it, so I don't really think of it as something that I caused or something I can change or should be embarrassed about. It's just a part of me. Think about your reactions to people with allergies. What do you think of them? My response has usually just been, "Oh, okay, good to know." It has never changed my perceptions of anyone.

People teased me a little at first and are almost always absentmindedly offering me bagels and cookies, but I just say that I can't and then they remember why. On another post they were saying that people want to help, but they need to know how (for example, when there are group meals). If people think you're weird, so be it, but at least if they know, they will be more likely to help accommodate your needs or watch out for you.

Overall, I have had positive responses with most people wanting to find out more about celiac once I mention it.

I think you'll start to feel more comfortable with letting people know once you start feeling better. If you approach it with a sense of humor, it will be easier. There's no reason to feel inferior. One of my co-workers is allergic to cats, dogs, tomatoes, and pollen and he seems to think he's better than everyone else. It's all in how you perceive of yourself.

Ezme

kbtoyssni Contributor

I have no problem talking about it. There are some people who will continuously ask you stupid questions about wheat, but for the most part I find people are genuinely interested. They ask questions about what I'm eating and what I can and cannot eat, but I see it more as an educational thing. My close friends are very good at buying gluten-free and ask questions but that's so they can make sure they have safe things for me to eat. In the end, you are going to be a little different, but I've gotten used to it and I haven't been made to feel like I'm some sort of freak.

JustJust Apprentice

STEVE,

I tell everyone about it! I look at it as a teaching moment for a lot of people. Since celiac disease is so common you never know who is also suffering from it that may be misdiagnosed! I suffered horribly for months and actully thought I was going to die and when I found out it was celiac disease i was so happy that I spread the word to everyone about what I have. In a weird way it makes me feel special. I have to have my food prepared specially now and think about how much healthier I am getting everyday by not only eating gluten-free but eating "good for you" foods now!

I just broke up with my fiance and wonder what it will be like dating in the future and having to tell someone I have celiac disease. I have come to the conclusion that if they can't accept me for what I am than I don't need them in my life. WE CAN"t do anything about the celiac disease to reverse it so we MUST maintain a gluten-free diet, it's as plain and simple as that. I don't plan on telling those that I date in the future right off the bat I have a DISEASE i would rather kindly put it as a food allergy and then gently break them into the disease that it really is. Yes disease does have a negative connotation to it............. so for now food allergy will do.

Oh YEAH and about getting made fun of........ I am known as Glutey to the family now......... SO I EMBRACED IT and made a shirt for myself with the name Glutey on it! if you already haven't seek out a local support group and ask others how they cope and manage with it, we are all in the same boat and I'd rather swim than sink, so I say the hell with anyone who doesn't understand. Hope my celiac sense helps! Justine :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,571
    • Most Online (within 30 mins)
      7,748

    Terri Bull
    Newest Member
    Terri Bull
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • xxnonamexx
      Is blending same as cold press? Is there any juice recipe you tried that you feel helped like the ginger turmeric? Is there a brand turmeric powder you used etc? I used Aloe vera years ago but the taste is hard to get down. What are your go to juices you made?
    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
×
×
  • Create New...