Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being "glutened"


Emma's Mom

Recommended Posts

Emma's Mom Rookie

I am wondering if you can share with me what it feels like to be "glutened" or what sort of signs/symptoms does your child display when this has happened to them?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

When I get glutened:

Big D within a 1/2 hr to an hour

irratable

can't concentrate

brain fog

big D will stop within a few hours, but the rest last for atleast a few days and depending on how bad for up to a week. This is all based on accidently getting glutened or CC'd one time, not continously!

Good Luck to you!

Guest andie

Hi

My son knows within half an hour also. I think it must be as soon as the gluten hits the small bowel.

He gets nauseated, pale. Depending on how much gluten he will go the the bathroom shortly after. he stays nauseated for several hours. Then he adds that food to his DON'T EAT list!

Andie

goldyjlox Contributor

Well, I believe that I got glutened tonight. I made PB cookies, and I think that I am getting a reaction to peanuts...been sick the last few times I ate them. About 1/3 I was bloated and looser stool...not D but it has since past. I know that Peanuts are not Gluten, but that would have caused my to not tolerate them as I never had problems before. Hope that helps.

shan Contributor

my dear daughter, 2 and 9 months, gets a reaction with in the hour, goes all pale and a real pain in the neck!! (excuse me for being so blunt!!) she moans and groans and i feel bad for anyone who comes in to visit us ;) She gets really sore in the diaper area, to the point that she is scared to make anything because it stings her so much... she cries when she makes - it must be really painful for her, poor kid!! (just by the way, does anyone know if it gets easier once she is toilet trained? can't afford the diapers for two kids anymore B) )She also gets this really pinched look about her face, it seems like it shrinks in size and that she loses all her fat that i worked so hard for her to gain :D

crittermom Enthusiast

my dd has a reaction within about 1-2 hours of being glutened. She gets a tummy ache, has to go potty and passes large white stools. For the next 24-48 hours she is a nightmare, cranky, irritable, defiant, clingy, just all around out of sorts. She also gets very pale and develops large purple circles under her eyes.

Ridgewalker Contributor

My son is one of those with a more delayed reaction. His doesn't begin until 12-24 hours after the glutening. Then his symptoms are:

*Dark circles under eyes

*Diarrhea and stomach pains, cramps

*Extreme emotions, grouchiness, meltdowns

*Difficulty concentrating, focusing, paying attention

*Much more likely to have an accident in his pants (He's almost 7 :( )

The worst of the symptoms lasts 24 hours, and then he'll have reduced symptoms for another day or two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    Kristina S
    Newest Member
    Kristina S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.