Please Help!

[momof2boys]

I am new here and hoping for some help.My son is 14months old.Has been on whole Milk that was slowly introduced at 10months old.On all table food since 7months old.On Sept. 28th he received three vaccinations at once.Hep B,Chicken Pox, and Flu.On Sept 29th he started with diarrhea.On Oct 8th diarrhea continued and he developed a reaction to the chicken Pox vaccine.He has never had a reaction to any vaccine and has been very healthy since birth(born w/Penile Torsion corrected at 6months old).He diarrhea has continued he goes three times a day(normally is firm before all this).He has had numerous blood tests all were fine.Three rounds of stool cultures all Virus,Parasites and Bacteria neg.There is sugar found in his stool.C-diff normal.His ped did a Celiac Panel:Antigliadin IgA: 2,

Antigliadin IgG:29,tTG:2,Reticulin IgA:neg,Reticulin IgG:neg.He was born a VERY happy baby.Always smiling.Since this has started he whines and cries and tantrums for no reason.He was taken off of whole Milk and put on Soy. He then had a dramatic decrease in table food he was eating and strated to loose weight.I suggested to my Ped putting him back on formula and he agreed.He is now on formula,no juice,and hardly eats any table food.When he has a BM undigested food appears in his diaper.He does not appear to be in pain.But he has started waking in the night screaming unconsolably for 30-45min(he has been sleeping thropugh the night since 8wks old).He ped pushed for a GI specialist at Children's hospital and the soonest they would see him is Dec16th.He goes in tomorrow for an Upper GI w/Small Bowel follow through.I just feel this has gone on long enough it's going on 7wks now.Are they missing something?Did Ped do the wrong Celiac tests?Thanks everyone for your much needed input!

Danielle

[gf4life]

His Antigliadin IgG:29 was positive. This does not necessarily mean that gluten is his problem, but it does indicate that something is going on. I know it is frustrating to have to wait. You could try to call the Children's Hospital and request a sooner date, but they get busy and it is hard to get an appointment for right away.

For us, I got the referral in November and it took until January to get in to the doctor at the Children's Hosptial here, then the doctor wanted to run more tests and wait another two months before seeing them again. By April I had tested them with Enterolab and already started them on the diet. When we got back to the doctor, did not give them a diagnosis of Celiac, but accepted that they were at least gluten/dairy intolerant since their symptoms had improved and has been supportive of their staying on the diet.

All three of my children were positive on the AGA IgG test only. I was not willing to keep them on gluten waiting for more damage to be done to make their other antibody levels test positive...

[stomica]

Hi! I feel for you, since we've gone through something very similar. My daughter started having loose stools around 17 months. All bloodwork and stool tests were negative. We saw an allergist, who thought she had a dairy intolerance. The dairy elimination diet didn't work. In fact, she become worse. She actually had some trace amounts of blood in her stool. We ended up seeing a ped GI shortly after who did a colonoscopy. He diagnosed her with inflammatory bowel disease. However, I, along with our allergist and ped, don't think allergic colitis can be completely ruled out at this time. My daughter also had elevated IgG's though all the other tests you mentioned were negative like your son's.

About 20% of kids who have a dairy intolerance/allergy also have a soy intolerance/allergy. Have you thought about removing both dairy and soy? Sounds like a reasonable plan. The elevated IgG's to anti-gliadin can simply be a "leaky gut effect." If you have any inflammation or permeability issue in the colon (related to allergies, parasites, disease...etc.) you might develop antibodies to gluten as well. The protein leaks out of the intestinal walls, where the body then creates antibodies against it. So, it should correct itself once the intestinal tract heals.

We're currently doing the dairy free, gluten free diet while limiting soy as well. Seems to be helping. It's hard to tell for sure though since she's on some medication for the colitis.

I assume your son doesn't have any blood or mucous in his stool? Mucous is a sign of inflammation in the intestinal tract, so it's something our ped GI checks regularly. Hope this info helps. I know it's hard to wait and see, but hang in there! You can try the dairy free/soy free diet before the scope - it won't affect the testing for celiac. It's worth a shot! Good luck.

Sue

[momof2boys]

Thank you both for your replies.He had the Upper GI and Small Bowel Follow Through this morning and results were neg.

We took him off of whole milk 4 weeks ago and put him on soy then his symptoms didn't change but he did stop eating solid foods and started loosing weight so the Ped said put him back of the Formula he was on when he was an infant since he did not have a problem then.Because he is not eating table food well anymore the ped is hesitant to take him off of the formula for fear of him becoming malnurished again.

He has no blood in his stool but does have mucus all the time.And sugar in his stool.

Now that the GI results are neg ped said the only thing left to do is wait til he sees the GI spec in Dec. Thanks again ladies.

[momof2boys]

Well, his Spec GI appt was moved to Monday morning.He just woke from his nap and had a horrible blow out.I called the doc because I was told after having the Barium yesterday it should have bulked his stools up.He said yes and was very concerned since he had nothing to eat yesterday but formula a piece of soft pretzel and four veggie puffs.He would not eat anything else.Ped said be prepared for them to Biopsy him since everything has come back neg except sugar in stools and IgG positive.

[Guest Annie74]

I am so sorry for all your son is going through! Is the formula you are feeding him gluten free? There is a link to formulas that are gluten-free on the list here on the site. I hope you figure out his problem quickly!

[momof2boys]

Shane had his GI appt today.She is doing an Endoscopy and Biopsy.I will know the date tomorrow.She took him off of formula and put him back on Whole Milk as she said obviously the formula isn't helping and he needs the fat from the milk for his Colon.She also wants him to eat a high Gluten diet until the biopsy(he isn't eating much food period so what he does eat she said make sure it's got Gluten in it.)Other then that she didn't speculate what the problem is.She said the Celiac Panal that his ped did was not the full panel so that doesn't help at all but his GI should a mild bowel displacement so she wants to go in a see whats going on she siad his diarrhea has got to stop.It's going on too long(2months today!) and the sores on his butt are strange they are bleeding.Let you all now.Thanks for the help!!