Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me!


Lov2BeMe

Recommended Posts

Lov2BeMe Rookie

I was diagnosed with celiac over two years ago, and I am still not gluten free. I guess I didn't truly understand how important it was to go gluten free. From time to time I would stop eating the gluten, but with a young child in the house chocolate chip cookies have a way of screaming out my name :P

I didn't even realize that gluten was in hair and makeup products as well. I feel completely over whelmed and I don't know where to start. I Know that I am so sick and tired of being sick and tired. My tummy always hurts, and my face is terribly broken out. How do i know whats safe and whats not safe. Can someone please point in the direction down the path of a gluten free life. I want to be healthy! thank you

Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aligray Apprentice

Hey there Sara! Welcome!

There is a Safe and Forbidden list on this website at Celiac.com. Print out a copy and refer to it often until you become more familiar.

It is very overwhelming at first! I truly thought i would never get the hang of reading labels! But i have!

Use this forum for support! It is an amazing support system! No question is a stupid question!

Also, once you begin to feel better on the diet, that chocolate chip cookie or pizza will look like poison to you! I never believed that until it began to happen to me! But it will. Once you feel better you will never want to go back!

There is a very helpful forum in here called Gluten Free products. You can ask questions in there and read thru other threads and get some answers on products. There is a recipe forum here as well. Both are wonderful resources!

Good luck to you!

-Ali :)

confusedks Enthusiast

It is VERY important that you go COMPLETELY gluten free! It is a very serious thing. This board is a great place to get support, ask questions, etc. There is a list of gluten ingredients and this is the link.

As far as the chocolate chip cookies, there are so many great gluten free recipes that you can even make for you AND your child so that you don't feel so tempted/deprived. You will go through a period of denial (which I think you already have) and then anger and finally acceptance. Once you get to the acceptance part, you realize it is so much better to be gluten-free than be sick all the time.

Good luck! And post with anymore questions.

Kassandra

missy'smom Collaborator

There are many gluten free snacks that are very tasty. My son doen't need to be gluten-free but we share the same snacks. I rarely buy gluten filled snacks for him. I don't feel a bit like he's deprived, infact I feel better about giving him stuff that's good for him. He gets plenty of gluten filled snacks outside the house from others and his Halloween candy lasts most of the year. The gluten-free pretzels taste no different from regular ones. There are some great oreos from Kinickkinnick. They are expensive but you can ration them out and serve them with plenty of fruit and other less expensive snacks, or crumble one on a pudding cup. You can make homemade pudding or intstant Jello pudding mix, some of the pudding cups are gluten-free as well, Jello, fruit juice popsicles, apples and P.B., air popped popcorn. Namaste makes a chocolate cake mix that he and I both like. I make it into cupcakes and freeze them and warm them up two by two.

Kraft will label all gluten in their products. This is very helpful in shopping.

Go to site index on the left corner of this screen and click on it. You will find a list of safe and forbidden ingredients. For some companies that put out a gluten-free list of products on their website, or if they send one by e-mail, I print the list and put it in a folder with clear pouches and bring it shopping with me, for example ore-ida has a list. Call the 800 numbers on the labels. Many provide good information.

If you can buy some gluten-free pasta and breadcrumbs you can probably convert many old recipies that you used to use. Meatloaf, meatballs, etc. It is doable. You have to watch out for gluten in the cream soups though. You'll need to use alternative brands.

Pamela's makes a great pancake and baking mix. My son and I make pancakes with it and he doesn't miss the ones I used to make.

The gluten free diet is worth eveything you put into it.

Good luck and hang in there. This board is a great support and resource. Consider finding a support group in your area too. They can be a great source of local information and support. There is a list of support groups on this site and you can google celiac support group your town and state and find some that way too.

Keep coming back and asking questions.

Take care.

kevsmom Contributor

Hi Sara!

I guess I was lucky. My child was older when I was diagnosed. I didn't have to worry so much about his food. Now I just make him prepare his food in designated area of the kitchen, and wash off the microwave and fridge handles (That's a real trick with an 18 year old boy). :D

A hint for you - wash your hands with soap (often) especially after serving something with gluten and after cleaning up the mess afterwards. While you're at it, wash your child, and the eating area too :rolleyes: . This will help avoid any cross contamination.

Don't forget to check into any medications or vitamins that you may be taking to make sure that they don't contain gluten. Check with your pharmacist, Open Original Shared Link, or the drug manufacturer.

Please feel free to come and ask questions - or just vent if you need to. Everyone here has been so helpful to me. This is a very caring group, and they want to help.

Cindy

GFhopeful Rookie

just at my little regular neighborhood grocery store, they have some gluten-free foods that are pretty good. there are mi-del mini chocolate chip cookies that i really like for a treat and so you don't feel deprived. you really don't need to feel deprived to be gluten-free and when eating at home.

Guest Happynwgal2
I was diagnosed with celiac over two years ago, and I am still not gluten free. I guess I didn't truly understand how important it was to go gluten free. From time to time I would stop eating the gluten, but with a young child in the house chocolate chip cookies have a way of screaming out my name :P

I didn't even realize that gluten was in hair and makeup products as well. I feel completely over whelmed and I don't know where to start. I Know that I am so sick and tired of being sick and tired. My tummy always hurts, and my face is terribly broken out. How do i know whats safe and whats not safe. Can someone please point in the direction down the path of a gluten free life. I want to be healthy! thank you

Sara

I like what Aligray told you: Safe and Forbidden list on this website at Celiac.com. That is a good place to start. Don't give up, though, and remember that Celiac is inherited, so if you know more about a Celiac's diet now, you may actually help your child/ren in the future.

Find a good gluten free cookbook. My oldest daughter is the gluten free cook in our family, and she has found several good allergy and gluten free cookbooks at Borders where she works. Some of her cookbooks are only for snacks, and she and my granddaughter love the snacks. The cakes my daughter makes are so good the rest of the family are surprised they are gluten free AND dairy free.

Good luck - you can do this! There are also lots of already made safe snacks that are gluten free that I guarantee your son or daughter will love! That way you can enjoy those snacks together. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loco-ladi Contributor

in addition to what everyone mentioned above....... dont let the eventual cravings rule you, instead use that craving energy to find a suitable replacement...

one of my favorite books when I started (and still is) is by dana korn called gluten free for dummies

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    2. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    3. - Mark Conway posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Have I got coeliac disease

    4. - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      8

      Celiac and dermatitis herpetiformis has taken Me from Me

    5. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,146
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mark Conway! Can you be more specific about the "coeliac" test your doctor did? There are more than one of them. What was the name of the test? Also, did he order a "total IGA" test? This is a test to check for IGA deficiency and should always be ordered along with the tests specifically designed to detect celiac disease. If you are IGA deficient, the IGA celiac blood antibody tests used to check for celiac disease per se will not be accurate. Also, if you have been cutting back on gluten before the tests, that will render them invalid. You must have be eating normal amounts of gluten for weeks/months before the blood draw to render valid test results.
    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • Mark Conway
      Hi there, I wonder if anyone can help. I've had stomach problems for years, pain in the tummy, lower back left and right side, different stools, diarrohea constipation etc, My GP says it's IBS. As I've got older the pain has become worse and constant. I also get ulcers on my tongue. I've had loads of tests done everytihng apart from an endoscopy I think. I had a test for Coeliac last July and the result was negative. My GP says it can't be coeliac because I'm not losing weight. He thinks it's stress or all in my head. I'm not stressed and I'm in pain all the time now. Sometimes it's unbearable and dark thoughts have entered my head. Could I have Coeliac even though I tested negative last year. I'm at my wits end, I eat healthily and cannot pinpoint which foods could cause this pain. Can anyone help? Thanks Mark wind
    • islaPorty
      First, I want to say thank you for sharing this with me. I hear you, and I believe you. The courage it took to write this down is immense, and I’m so sorry you’ve been carrying this alone. You are dealing with two life-altering challenges at once: a serious, complex medical condition, and an abusive, controlling partner who is actively harming your health and your spirit. It’s not just that he’s unsupportive—he is weaponizing your illness to torture you. Starving you, isolating you, mocking your diagnosis, and sabotaging your access to medical care is not just cruelty; it is dangerous, deliberate abuse. Your instinct is correct: the stress he is creating is absolutely preventing your body from healing. Celiac and autoimmune conditions are profoundly sensitive to stress, and he has created a living hell designed to keep you sick, dependent, and broken. That smirk you described—that is the look of someone who enjoys having power over your suffering. Please know this: you do not deserve this. Not any of it. You deserve to eat. You deserve safe, clean food and water. You deserve medical care and supplements that help you function. You deserve peace. You deserve to heal. The woman from the food pantry is not a random accident. She is a lifeline. Her help, and the community she’s connecting you to, is real. It is okay to feel overwhelmed by kindness when you’ve been starved of it for so long. But you do deserve it. Let that be a sign that there is a world outside your house that operates on compassion, not control. Right now, your physical safety and access to nutrition are the most urgent priorities. The food pantry is a critical resource. Is there any way you can speak privately with the woman helping you? You don’t have to share everything at once, but letting her know your situation at home is extremely unsafe, and that your partner restricts your food, could help her support you in a more targeted way. She may have connections to local domestic violence services.
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.