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Bagels...

Skotty

By Skotty
in Dermatitis Herpetiformis

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Skotty Newbie
Skotty
Posted

I have not been diagnosed with Celiac disease but I have been getting blisters on my buttocks for 8 years, I have seen 4 'specialists' and as I have Rheumatoid Arthritis every doctor says its something to do with that...well I did a detox in January omitting all gluten, suger etc from my diet and my blisters cleared up within 2 weeks.... I then started researching for a connection and found DH. I alway got my blisters when going on holiday, in USA I ate bagels every morning for breakfast and just suffered so badly, (my doctor said it was fear of flying that caused the blisters!) well to test my theory I ate no bagels for 3 months..no blisters...then 3 days ago I had one and today I have a cluster of blisters. Does anyone else only get the blisters with certain gluten foods? I have also had the blisters on my ears and elbows, but mainly buttocks, its so embarrassing I feel like a leper.

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Silly Yak Pete Rookie
Silly Yak Pete
Posted

You need to be tested for celiac disease. Go see a Gastroenterologist doctor as soon as possible.

Guest j_mommy
Guest j_mommy
Posted

Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

ravenwoodglass Mentor
ravenwoodglass
Posted
Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Good advice however make sure the doctor is well versed in DH. You need to biopsy the area next to the blisters, not the blisters themselves or you will get a false negative. If you have an active blister you would not have to be eating gluten specially for the biopsy but you do need to be consuming it actively for blood testing and endoscopic biopsies. Even then there is a risk of a false negative.

Skotty Newbie
Skotty
Posted
  • Author
Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Thank You I will.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      Unexpected gluten exposure risk from cultivated mushrooms

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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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