Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bagels...

Skotty

By Skotty
in Dermatitis Herpetiformis

Recommended Posts

Skotty Newbie
Skotty
Posted

I have not been diagnosed with Celiac disease but I have been getting blisters on my buttocks for 8 years, I have seen 4 'specialists' and as I have Rheumatoid Arthritis every doctor says its something to do with that...well I did a detox in January omitting all gluten, suger etc from my diet and my blisters cleared up within 2 weeks.... I then started researching for a connection and found DH. I alway got my blisters when going on holiday, in USA I ate bagels every morning for breakfast and just suffered so badly, (my doctor said it was fear of flying that caused the blisters!) well to test my theory I ate no bagels for 3 months..no blisters...then 3 days ago I had one and today I have a cluster of blisters. Does anyone else only get the blisters with certain gluten foods? I have also had the blisters on my ears and elbows, but mainly buttocks, its so embarrassing I feel like a leper.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Silly Yak Pete Rookie
Silly Yak Pete
Posted

You need to be tested for celiac disease. Go see a Gastroenterologist doctor as soon as possible.

Guest j_mommy
Guest j_mommy
Posted

Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

ravenwoodglass Mentor
ravenwoodglass
Posted
Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Good advice however make sure the doctor is well versed in DH. You need to biopsy the area next to the blisters, not the blisters themselves or you will get a false negative. If you have an active blister you would not have to be eating gluten specially for the biopsy but you do need to be consuming it actively for blood testing and endoscopic biopsies. Even then there is a risk of a false negative.

Skotty Newbie
Skotty
Posted
  • Author
Yup I agree, go get tested...or have them test the blisters themselves!!! That is where I got them as well and still do if I get CC'd!!!

Note: You need to be eating gluten for the tests!

Good Luck and I hope you find some answers!

Thank You I will.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,882
    • Most Online (within 30 mins)
      7,748
    kbullmer
    Newest Member
    kbullmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      nuts.com -- no longer Celiac safe?

      By Scott Adams · Posted

      This older article makes me wonder about the GFCO and its protocols:  
    • Aphrodite
      nuts.com -- no longer Celiac safe?

      By Aphrodite · Posted

      I’ve been using almond flour from nuts.com for over 10 years. I have dermatitis herpetiformis all over. The rash started about two months ago. I finally eliminated the almond flour, labeled certified gluten free, two weeks ago, and I think the dermatitis herpetiformis is finally healing. I am so bummed. 
    • Scott Adams
      Gluten free Areds 2 Vitamins

      By Scott Adams · Posted

      If you need that designation you'll likely need to switch to a different brand. It's unfortunate that they don't add it to their label and test for gluten.
    • Michael P
      Gluten free Areds 2 Vitamins

      By Michael P · Posted

      Thank you for the reply  , I have tried the Baush & Lomb brand and did have a gluten reaction.  O spoke to the mfg and they state the same as many other mfgs.   - NO Gluten intentionally added to product , but they have no control ( they choose not to) over their suppliers of various ingredients  I am really trying to only take vitamins  that clearly state gluten free  
    • Scott Adams
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By Scott Adams · Posted

      DiGiorno reformulated and have not been using wheat starch for a couple of years now, so this should not be an issue: https://www.goodnes.com/digiorno/products/digiorno-gluten-free-frozen-pepperoni-pizza/ It does contain other ingredients that may be causing you IBS-like issues, for example guar gum.  Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
×
×
  • Create New...