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How Long Before You See Results From gluten-free Diet?

Kara'sMom

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Kara'sMom Explorer
Kara'sMom
Posted

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary

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wowzer Community Regular
wowzer
Posted

Hi, I think if your daughter is hungry all of the time, that is a good sign. That was one of the things that I noticed when I first went gluten free. I was feeling pretty good after about 2 weeks. Everyone is different. I noticed some improvements in the first couple of days. Since it is a different way of eating, I sometimes don't know what to eat. It sounds like she is on the mend, so I'm sure she will begin to gain her weight back. Good Luck

jamibrit Newbie
jamibrit
Posted

My 3 yo son lost 4 pounds- went from 29 to 25 lbs and gained them back after being gluten free for 2 weeks. He too is hungry all the time it seems. This is all very new to me so I don't know for sure if its a good sign but it seems to be.

Kara'sMom Explorer
Kara'sMom
Posted
  • Author

I am so new to this, too. Today is Kara's 3rd day gluten-free. Her first school day. She woke up not wanting to go to school...then when I had to read the lunch menu to my 6 yr old...she bursts out crying. Oh how I wanted to cry with her. I packed her a good lunch...but let's face it...it's not the pizza they're having today at school. My stomach is in knots thinking about her and what she's going through.

Do any of you give your kids Trix yogurt? I'm nervous about everything when it doesn't flat out say GLUTEN FREE.

Thanks.

jamibrit Newbie
jamibrit
Posted

I bought the shopping guide advertised on here and it says trix yogurt is fine (all the yoplait kids yogurts are ok). I also read on here that trix cereal is ok too, so I bought a box of it for my son to have at school when the kids are eating sugary snacks on someones birthday. Going to the grocery store is a daunting task these days, but the guide is actually very helpful.

shan Contributor
shan
Posted

sorry to say this, but my daughter had a reaction both to the trix and to pebbles cereals :(

jamibrit Newbie
jamibrit
Posted

oh no! ugh this is so frustrating.

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gfpaperdoll Rookie
gfpaperdoll
Posted

Kara's mom, I made this for my grandkids when they were gluten-free (long story, my son's fault they are not now gluten-free)

Take a white corn tortilla & butter one side put a slice of cheese on the other side, top with another corn tortilla, toast both sides in a skillet, just takes a bit, put precooked pizza toppings on top of the tortilla, bake in oven till heated thru, cut into wedges, wrap in foil, put in lunch... or let them have it for breakfast...

ShayBraMom Apprentice
ShayBraMom
Posted

I know the food is carzy expensive! but go here, that is her on CVeliac.com- they have a Shoppingguide about more then 20.000 products off the shelf in our supermakrets, that are naturally glutenfree or point them out with out us having to read uip on it. This should help cut your costs down, I'll buy me one too! https://www.celiac.com/catalog/product_info...products_id=802

good luck!!!!

My 9 yr old DD went from 60lbs to a steady 54 and hasnt' gained weight in months. This was the only sign of something wrong. She pretty much stopped eating a few months ago b/c she said she always felt like she was going to throw up..which she never did. She was diagnosed with acid reflux late August. She's been on Prilosec since then and when I took her back a month and a half later to her Dr...and she STILL hadnt' gained any weight...her Dr. said...time to take action...she's still 54lbs. So with a positive blood test and waiting for biopsy results...shes been gluten-free for two days.

I was wondering when you saw results in your child of feeling better and gaining weight? So far on the gluten-free diet...Kara is hungry constantly! And with the prices of the food....GEESH....I gotta win the lottery just to buy snack bars!!!!!!!!!!!

Thanks!

Mary

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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