Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Vent?

missnbagels

Recommended Posts

missnbagels Explorer
missnbagels
Posted

I 'm having one of those weeks. But seriously, i don't know anyone who has celiac. My friends try to understand but yet they still forget and eat donuts in front of me and offer me some. Im not mad at them or anything. I know i have to deal with those kinds of situations but idk .

Also my parents always make cookies and pizzas, and i get so sick to my stomach but i don't want to complain. They have to eat too.

Sorry for venting. like i said don't know anyone who'd understand

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Missnbagels,

I totally understand what you are going through. The other day my brother made chocolate chip cookies (with wheat flour) and I almost died...they smelled so good! But he ended up burning them, so I wasn't too jealous!

As far as friends go, it is really difficult. Last night I went to a party and they kept offering me cake and sandwiches!! They all know of my gluten issue, but they choose to ignore it. I am not saying that they need to make me gluten-free food, but don't offer me gluten food 100 times in a night.

If you ever want to talk, you can feel free to PM me.

Kassandra

Guest j_mommy
Guest j_mommy
Posted

It's a bummer. Vent all you want to.

Do you still live at home???? I would have some gluten free goodies just incase so you don't feel left out when they're eating reg ones! That has saved me sometimes!

Good Luck!

missnbagels Explorer
missnbagels
Posted
  • Author

Yeah i do live at home

I have food for me but it doesn't bother me that they have those foods, like pizzas and cookies, because i have those also. But i have problems smelling strong smelling foods like cookies browies, pizzas, etc. So when they have those foods, i can't go anywhere to get away from the smell. then i get sick to my stomach

so it's frusterating.

jnessa055 Newbie
jnessa055
Posted

i know how you feel girl. i dont live at home but i do live with 4 guys that are HUNGRY and they dont have celiac so they are ALWAYS eating yummy foods, cake, cookies, biscuts and gravy, breakfast burritos, etc.. it kills me! its hard bc they dont understand.. i basically drool over their food while they eat lol. i just go and grab something else that i know i can eat and pretend it tastes the same.. haha doesnt work. thats why im glad i found this forum because no one i know has celiac disease. but its ok. im just waitin for the day that every restuarant has a gluten free menu ha. one day! :rolleyes:

Fairy-Princess Newbie
Fairy-Princess
Posted

Hey, I am Allie. I am new. I just want to say I know how you feel. I don't know anyone with celiac either. In the begining I stuck to the diet for several years, wouldn't even touch breads and stuff. Everyone always offers(d) me things and it was just annoying. The past 2-3 years I havent really watched what I have been eating. Which I don't reccomend. It got to me after a while, especially after seeing everyone eat whatever they want. But all in all I know how you feel. Though My friends were good with it. My one friend always made new cookies of her own for me =) my other friend would try my Gluten-free snacks with me. The Gluten-free snacks are pricey i admit, but I have things you can make from your kitchen. If anyone ever wants to talk, let me know. I'm 17, going on 18 on feb 5. Thanks for reading all that! Bye.

taylor- Rookie
taylor-
Posted

hey! so growing up i never knew anyone who had celiac disease, or even a food allergy. back in the day they didn't have any kid support group events so I would go to the regular meetings with my mom. in this particular group, all the people in the group were over the age of 60 and had several other problems as a result of a late diagnosis. as i got older ROCK started to form and so i would go to some of those events when we could.

I defintely suggest looking into finding some sort of group in your area and checking it out. even if they are older than you it still helps to be able to have a meal and not worry about anything and know that there are others out there.

When I moved to tallahassee this year it was so nice, because while I do answer the same stupid questions from people and have to reject food and trips to subway, so many more people have heard of it before, and a large majority of people i have met know something about celiac, and i've met a few that have it.

but everyone on here is here for you. they are soo willing to answer any questions and listen and complain with you, so feel free to complain haha..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in Fl my age...

missnbagels Explorer
missnbagels
Posted
  • Author

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

taylor- Rookie
taylor-
Posted
WHY AREN'T THERE ANY KID SUPPORT MEETINGS IN FLORIDA!!!! Sorry, needed to get that out. There are none within a three-hour drive, and even the reg ones are far... <_< Kinda frusterating. Only a couple of my friends understand. (A couple meaning two.) I don't hardly know any adults with celiac, let alone kids! Unless you count here on the forum... Then I know a few... But none personally. I wish I did. It'd be great to know another girl or boy in South Fl my age...

Hey! i know i went to a kids meeting or two a while ago..it was when i was in middle school..so im not sure what the age group is or if they even meet anymore, i can call my mom back home and ask her if she has heard anything about a kids group meeting. we usually had to drive around 45 minutes to get to a meeting.

Virgie Apprentice
Virgie
Posted

Hi!! My daughter is 13 with Celiac and lives in Minnesota. But yeah she feels like she is the only one around here that has it too.

Virgie

I sure know what you mean. I don't know anyone with celiac. A girl i talk to says her aunt and aunt's friend has it but i don't know them. It is definately frusterating. I went to a ROCK funderaser thing and all i saw were little kids and elderly. There were absolutely no teens. I'm like come on i can't be the only teen in MN with Celiac!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.